Improving a newly developed patient-reported outcome for thyroid patients, using cognitive interviewing.
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| Title: | Improving a newly developed patient-reported outcome for thyroid patients, using cognitive interviewing. |
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| Authors: | Watt, Torquil, Rasmussen, Åse, Groenvold, Mogens, Bjorner, Jakob, Watt, Sara, Bonnema, Steen, Hegedüs, Laszlo, Feldt-Rasmussen, Ulla |
| Source: | Quality of Life Research. Sep2008, Vol. 17 Issue 7, p1009-1017. 9p. 3 Charts. |
| Subjects: | Thyroid diseases, Eye, Hypothyroidism, Goiter, Hyperthyroidism |
| Abstract: | Objective To improve a newly developed patient-reported outcome measure for thyroid patients using cognitive interviewing. Methods Thirty-one interviews using immediate retrospective and expansive probing were conducted among patients with non-toxic goiter ( n = 4), nodular toxic goiter ( n = 5) Graves’ disease ( n = 6), thyroid eye-disease ( n = 6), and primary hypothyroidism ( n = 10). The questionnaire was revised successively. Six iterative rounds of interviews were conducted. Identified problems were categorized according to Tourangeau’s four-stage model. Results Problems were identified 126 times in 43 of the 99 tested items, four of the 15 introductions, and four of the five response categories. Fifty-four problems involved comprehension, one retrieval, 23 judgment, 28 response, and 20 were not applicable to the four-stage model. Among all problems identified, 18 concerned attribution, i.e. whether or not to report only issues considered of thyroid causality. Within each round of interviews, the number of problems declined from an initial average of six per interview to two, mainly due to a reduction in the number of problems associated with comprehension. The least amount of reduction was within the set of problems involving attribution. Conclusion The cognitive interview methodology was effective in identifying and reducing problems within the questionnaire responding process. Patients tended to selectively report problems they considered to be caused by their thyroid disease even when specifically instructed not to. [ABSTRACT FROM AUTHOR] |
| Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 33937075 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Improving a newly developed patient-reported outcome for thyroid patients, using cognitive interviewing. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Watt%2C+Torquil%22">Watt, Torquil</searchLink><br /><searchLink fieldCode="AR" term="%22Rasmussen%2C+Åse%22">Rasmussen, Åse</searchLink><br /><searchLink fieldCode="AR" term="%22Groenvold%2C+Mogens%22">Groenvold, Mogens</searchLink><br /><searchLink fieldCode="AR" term="%22Bjorner%2C+Jakob%22">Bjorner, Jakob</searchLink><br /><searchLink fieldCode="AR" term="%22Watt%2C+Sara%22">Watt, Sara</searchLink><br /><searchLink fieldCode="AR" term="%22Bonnema%2C+Steen%22">Bonnema, Steen</searchLink><br /><searchLink fieldCode="AR" term="%22Hegedüs%2C+Laszlo%22">Hegedüs, Laszlo</searchLink><br /><searchLink fieldCode="AR" term="%22Feldt-Rasmussen%2C+Ulla%22">Feldt-Rasmussen, Ulla</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. Sep2008, Vol. 17 Issue 7, p1009-1017. 9p. 3 Charts. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Thyroid+diseases%22">Thyroid diseases</searchLink><br /><searchLink fieldCode="DE" term="%22Eye%22">Eye</searchLink><br /><searchLink fieldCode="DE" term="%22Hypothyroidism%22">Hypothyroidism</searchLink><br /><searchLink fieldCode="DE" term="%22Goiter%22">Goiter</searchLink><br /><searchLink fieldCode="DE" term="%22Hyperthyroidism%22">Hyperthyroidism</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Objective To improve a newly developed patient-reported outcome measure for thyroid patients using cognitive interviewing. Methods Thirty-one interviews using immediate retrospective and expansive probing were conducted among patients with non-toxic goiter ( n = 4), nodular toxic goiter ( n = 5) Graves’ disease ( n = 6), thyroid eye-disease ( n = 6), and primary hypothyroidism ( n = 10). The questionnaire was revised successively. Six iterative rounds of interviews were conducted. Identified problems were categorized according to Tourangeau’s four-stage model. Results Problems were identified 126 times in 43 of the 99 tested items, four of the 15 introductions, and four of the five response categories. Fifty-four problems involved comprehension, one retrieval, 23 judgment, 28 response, and 20 were not applicable to the four-stage model. Among all problems identified, 18 concerned attribution, i.e. whether or not to report only issues considered of thyroid causality. Within each round of interviews, the number of problems declined from an initial average of six per interview to two, mainly due to a reduction in the number of problems associated with comprehension. The least amount of reduction was within the set of problems involving attribution. Conclusion The cognitive interview methodology was effective in identifying and reducing problems within the questionnaire responding process. Patients tended to selectively report problems they considered to be caused by their thyroid disease even when specifically instructed not to. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s11136-008-9364-z Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 9 StartPage: 1009 Subjects: – SubjectFull: Thyroid diseases Type: general – SubjectFull: Eye Type: general – SubjectFull: Hypothyroidism Type: general – SubjectFull: Goiter Type: general – SubjectFull: Hyperthyroidism Type: general Titles: – TitleFull: Improving a newly developed patient-reported outcome for thyroid patients, using cognitive interviewing. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Watt, Torquil – PersonEntity: Name: NameFull: Rasmussen, Åse – PersonEntity: Name: NameFull: Groenvold, Mogens – PersonEntity: Name: NameFull: Bjorner, Jakob – PersonEntity: Name: NameFull: Watt, Sara – PersonEntity: Name: NameFull: Bonnema, Steen – PersonEntity: Name: NameFull: Hegedüs, Laszlo – PersonEntity: Name: NameFull: Feldt-Rasmussen, Ulla IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 09 Text: Sep2008 Type: published Y: 2008 Identifiers: – Type: issn-print Value: 09629343 Numbering: – Type: volume Value: 17 – Type: issue Value: 7 Titles: – TitleFull: Quality of Life Research Type: main |
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