Choosing appropriate patient-reported outcomes instrument for glaucoma research: a systematic review of vision instruments.
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| Title: | Choosing appropriate patient-reported outcomes instrument for glaucoma research: a systematic review of vision instruments. |
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| Authors: | Che Hamzah, Jemaima, Burr, Jennifer, Ramsay, Craig, Azuara-Blanco, Augusto, Prior, Maria |
| Source: | Quality of Life Research. Sep2011, Vol. 20 Issue 7, p1141-1158. 18p. |
| Subjects: | Glaucoma, Vision disorders, Treatment of eye diseases, Quality of life, Clinical trials, World Health Organization, National Eye Institute, Health surveys |
| Abstract: | Purpose: To identify vision Patient-Reported Outcomes instruments relevant to glaucoma and assess their content validity. Methods: MEDLINE, MEDLINE in Process, EMBASE and SCOPUS (to January 2009) were systematically searched. Observational studies or randomised controlled trials, published in English, reporting use of vision instruments in glaucoma studies involving adults were included. In addition, reference lists were scanned to identify additional studies describing development and/or validation to ascertain the final version of the instruments. Instruments' content was then mapped onto a theoretical framework, the World Health Organization International Classification of Functioning, Disability and Health. Two reviewers independently evaluated studies for inclusion and quality assessed instrument content. Results: Thirty-three instruments were identified. Instruments were categorised into thirteen vision status, two vision disability, one vision satisfaction, five glaucoma status, one glaucoma medication related to health status, five glaucoma medication side effects and six glaucoma medication satisfaction measures according to each instruments' content. The National Eye Institute Visual Function Questionnaire-25, Impact of Vision Impairment and Treatment Satisfaction Survey-Intraocular Pressure had the highest number of positive ratings in the content validity assessment. Conclusion: This study provides a descriptive catalogue of vision-specific PRO instruments, to inform the choice of an appropriate measure of patient-reported outcomes in a glaucoma context. [ABSTRACT FROM AUTHOR] |
| Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 64846323 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Choosing appropriate patient-reported outcomes instrument for glaucoma research: a systematic review of vision instruments. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Che+Hamzah%2C+Jemaima%22">Che Hamzah, Jemaima</searchLink><br /><searchLink fieldCode="AR" term="%22Burr%2C+Jennifer%22">Burr, Jennifer</searchLink><br /><searchLink fieldCode="AR" term="%22Ramsay%2C+Craig%22">Ramsay, Craig</searchLink><br /><searchLink fieldCode="AR" term="%22Azuara-Blanco%2C+Augusto%22">Azuara-Blanco, Augusto</searchLink><br /><searchLink fieldCode="AR" term="%22Prior%2C+Maria%22">Prior, Maria</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. Sep2011, Vol. 20 Issue 7, p1141-1158. 18p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Glaucoma%22">Glaucoma</searchLink><br /><searchLink fieldCode="DE" term="%22Vision+disorders%22">Vision disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Treatment+of+eye+diseases%22">Treatment of eye diseases</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Clinical+trials%22">Clinical trials</searchLink><br /><searchLink fieldCode="DE" term="%22World+Health+Organization%22">World Health Organization</searchLink><br /><searchLink fieldCode="DE" term="%22National+Eye+Institute%22">National Eye Institute</searchLink><br /><searchLink fieldCode="DE" term="%22Health+surveys%22">Health surveys</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Purpose: To identify vision Patient-Reported Outcomes instruments relevant to glaucoma and assess their content validity. Methods: MEDLINE, MEDLINE in Process, EMBASE and SCOPUS (to January 2009) were systematically searched. Observational studies or randomised controlled trials, published in English, reporting use of vision instruments in glaucoma studies involving adults were included. In addition, reference lists were scanned to identify additional studies describing development and/or validation to ascertain the final version of the instruments. Instruments' content was then mapped onto a theoretical framework, the World Health Organization International Classification of Functioning, Disability and Health. Two reviewers independently evaluated studies for inclusion and quality assessed instrument content. Results: Thirty-three instruments were identified. Instruments were categorised into thirteen vision status, two vision disability, one vision satisfaction, five glaucoma status, one glaucoma medication related to health status, five glaucoma medication side effects and six glaucoma medication satisfaction measures according to each instruments' content. The National Eye Institute Visual Function Questionnaire-25, Impact of Vision Impairment and Treatment Satisfaction Survey-Intraocular Pressure had the highest number of positive ratings in the content validity assessment. Conclusion: This study provides a descriptive catalogue of vision-specific PRO instruments, to inform the choice of an appropriate measure of patient-reported outcomes in a glaucoma context. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s11136-010-9831-1 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 18 StartPage: 1141 Subjects: – SubjectFull: Glaucoma Type: general – SubjectFull: Vision disorders Type: general – SubjectFull: Treatment of eye diseases Type: general – SubjectFull: Quality of life Type: general – SubjectFull: Clinical trials Type: general – SubjectFull: World Health Organization Type: general – SubjectFull: National Eye Institute Type: general – SubjectFull: Health surveys Type: general Titles: – TitleFull: Choosing appropriate patient-reported outcomes instrument for glaucoma research: a systematic review of vision instruments. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Che Hamzah, Jemaima – PersonEntity: Name: NameFull: Burr, Jennifer – PersonEntity: Name: NameFull: Ramsay, Craig – PersonEntity: Name: NameFull: Azuara-Blanco, Augusto – PersonEntity: Name: NameFull: Prior, Maria IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 09 Text: Sep2011 Type: published Y: 2011 Identifiers: – Type: issn-print Value: 09629343 Numbering: – Type: volume Value: 20 – Type: issue Value: 7 Titles: – TitleFull: Quality of Life Research Type: main |
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