Living with children who have coeliac disease: a parental perspective.

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Title: Living with children who have coeliac disease: a parental perspective.
Authors: Cederborg, A.‐C. (AUTHOR), Hultman, E. (AUTHOR), Magnusson, K. F. (AUTHOR)
Source: Child: Care, Health & Development. Jul2012, Vol. 38 Issue 4, p484-489. 6p.
Subjects: Adaptability (Personality), Celiac disease, Fathers, Gluten-free diet, Interviewing, Phenomenology, Research methodology, Mothers, Psychology of parents, Family relations, Parent attitudes, Children, Psychology
Abstract: Background This study explores how a child's coeliac disease (CD) influences the daily life of families because such knowledge can enhance the understanding of how to support family adjustment to a gluten-free diet (GFD). Methods We used an interpretative phenomenological approach, interviewing 20 parents of 14 children diagnosed with CD about their individual thoughts and beliefs. Results Once parents know, especially when their children are young, they seem to have the capacity to rapidly adapt to GFD, mainly because they notice how quickly their children recover. Parents may have problems controlling how staff at daycare and at school complies with their information about a GFD. Conclusions To ensure that children with CD are given a GFD at daycare and school, it is necessary for municipalities to educate staff about the disease and to give them the prerequisites for serving a GFD. There is also a need of early identification of children who may have CD. When parents express their worries, not just at the hospital but also at the well-baby clinic and primary care units, supporting treatment could prevent children from suffering from inappropriate food. [ABSTRACT FROM AUTHOR]
Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: Living with children who have coeliac disease: a parental perspective.
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  Data: <searchLink fieldCode="AR" term="%22Cederborg%2C+A%2E‐C%2E%22">Cederborg, A.‐C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Hultman%2C+E%2E%22">Hultman, E.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Magnusson%2C+K%2E+F%2E%22">Magnusson, K. F.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Child%3A+Care%2C+Health+%26+Development%22">Child: Care, Health & Development</searchLink>. Jul2012, Vol. 38 Issue 4, p484-489. 6p.
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  Data: <searchLink fieldCode="DE" term="%22Adaptability+%28Personality%29%22">Adaptability (Personality)</searchLink><br /><searchLink fieldCode="DE" term="%22Celiac+disease%22">Celiac disease</searchLink><br /><searchLink fieldCode="DE" term="%22Fathers%22">Fathers</searchLink><br /><searchLink fieldCode="DE" term="%22Gluten-free+diet%22">Gluten-free diet</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Phenomenology%22">Phenomenology</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Mothers%22">Mothers</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+parents%22">Psychology of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Family+relations%22">Family relations</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Children%22">Children</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology%22">Psychology</searchLink>
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  Data: Background This study explores how a child's coeliac disease (CD) influences the daily life of families because such knowledge can enhance the understanding of how to support family adjustment to a gluten-free diet (GFD). Methods We used an interpretative phenomenological approach, interviewing 20 parents of 14 children diagnosed with CD about their individual thoughts and beliefs. Results Once parents know, especially when their children are young, they seem to have the capacity to rapidly adapt to GFD, mainly because they notice how quickly their children recover. Parents may have problems controlling how staff at daycare and at school complies with their information about a GFD. Conclusions To ensure that children with CD are given a GFD at daycare and school, it is necessary for municipalities to educate staff about the disease and to give them the prerequisites for serving a GFD. There is also a need of early identification of children who may have CD. When parents express their worries, not just at the hospital but also at the well-baby clinic and primary care units, supporting treatment could prevent children from suffering from inappropriate food. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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      – Type: doi
        Value: 10.1111/j.1365-2214.2011.01273.x
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      – Code: eng
        Text: English
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      – SubjectFull: Adaptability (Personality)
        Type: general
      – SubjectFull: Celiac disease
        Type: general
      – SubjectFull: Fathers
        Type: general
      – SubjectFull: Gluten-free diet
        Type: general
      – SubjectFull: Interviewing
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      – SubjectFull: Phenomenology
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      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Mothers
        Type: general
      – SubjectFull: Psychology of parents
        Type: general
      – SubjectFull: Family relations
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      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Children
        Type: general
      – SubjectFull: Psychology
        Type: general
    Titles:
      – TitleFull: Living with children who have coeliac disease: a parental perspective.
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            NameFull: Hultman, E.
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            NameFull: Magnusson, K. F.
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              Text: Jul2012
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              Y: 2012
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