If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis.
Saved in:
| Title: | If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis. |
|---|---|
| Authors: | Harding, R., Simms, V., Calanzani, N., Higginson, I. J., Hall, S., Gysels, M., Meñaca, A., Bausewein, C., Deliens, L., Ferreira, P., Toscani, F., Daveson, B. A., Ceulemans, L., Gomes, B. |
| Source: | Psycho-Oncology. Oct2013, Vol. 22 Issue 10, p2298-2305. 8p. 5 Charts. |
| Subjects: | Cancer prognosis, Terminally ill, Mortality, Clinical medicine, Clinical pharmacology, Medical informatics |
| Abstract: | Objective With increasing European cancer deaths, clinicians must manage information regarding poor prognosis. This study aimed to determine European citizens' preferences, within a scenario of serious illness such as cancer with less than a year to live, for information disclosure regarding poor prognosis, the likely symptoms and problems, and the care options available, to measure variations between countries and to identify factors associated with preferences. Methods A population-based cross-national telephone survey using random digit dialling in seven countries was conducted. Results Among 9344 respondents, data revealed an international preference (73.9%) to always be informed in the scenario of having a serious illness such as cancer with less than a year to live. This varied from 67.6% in Italy to 80.7% in Flanders. A minority (21.1%) did not want such information unless they ask, or at all. People younger than 70 years (OR 0.72, 95% CI 0.62-0.83, p < 0.001), men (OR 1.23, 95% CI 1.10-1.37, p < 0.001), those with experience of illness (OR = 1.20. 95% CI 1.01-1.43, p < 0.05) and with more education (OR = 1.20, 95% CI 1.09-1.32, p < 0.001) were more likely to want to know of limited time left. Conclusions The models confirmed the influence of four factors in more than one country (age, gender, education and most concerning problem) and added 11 country-specific factors to which national policies and clinical practice should respond. These findings confirm a majority public preference to be informed in a scenario of poor prognosis. Policy clinical practice should facilitate elucidation and delivery of preferences. Evidence for effective communication skills-building interventions for clinicians is required. Copyright © 2013 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] |
| Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
|---|---|
| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 90527878 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
| IllustrationInfo | |
| Items | – Name: Title Label: Title Group: Ti Data: If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Harding%2C+R%2E%22">Harding, R.</searchLink><br /><searchLink fieldCode="AR" term="%22Simms%2C+V%2E%22">Simms, V.</searchLink><br /><searchLink fieldCode="AR" term="%22Calanzani%2C+N%2E%22">Calanzani, N.</searchLink><br /><searchLink fieldCode="AR" term="%22Higginson%2C+I%2E+J%2E%22">Higginson, I. J.</searchLink><br /><searchLink fieldCode="AR" term="%22Hall%2C+S%2E%22">Hall, S.</searchLink><br /><searchLink fieldCode="AR" term="%22Gysels%2C+M%2E%22">Gysels, M.</searchLink><br /><searchLink fieldCode="AR" term="%22Meñaca%2C+A%2E%22">Meñaca, A.</searchLink><br /><searchLink fieldCode="AR" term="%22Bausewein%2C+C%2E%22">Bausewein, C.</searchLink><br /><searchLink fieldCode="AR" term="%22Deliens%2C+L%2E%22">Deliens, L.</searchLink><br /><searchLink fieldCode="AR" term="%22Ferreira%2C+P%2E%22">Ferreira, P.</searchLink><br /><searchLink fieldCode="AR" term="%22Toscani%2C+F%2E%22">Toscani, F.</searchLink><br /><searchLink fieldCode="AR" term="%22Daveson%2C+B%2E+A%2E%22">Daveson, B. A.</searchLink><br /><searchLink fieldCode="AR" term="%22Ceulemans%2C+L%2E%22">Ceulemans, L.</searchLink><br /><searchLink fieldCode="AR" term="%22Gomes%2C+B%2E%22">Gomes, B.</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Psycho-Oncology%22">Psycho-Oncology</searchLink>. Oct2013, Vol. 22 Issue 10, p2298-2305. 8p. 5 Charts. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Cancer+prognosis%22">Cancer prognosis</searchLink><br /><searchLink fieldCode="DE" term="%22Terminally+ill%22">Terminally ill</searchLink><br /><searchLink fieldCode="DE" term="%22Mortality%22">Mortality</searchLink><br /><searchLink fieldCode="DE" term="%22Clinical+medicine%22">Clinical medicine</searchLink><br /><searchLink fieldCode="DE" term="%22Clinical+pharmacology%22">Clinical pharmacology</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+informatics%22">Medical informatics</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Objective With increasing European cancer deaths, clinicians must manage information regarding poor prognosis. This study aimed to determine European citizens' preferences, within a scenario of serious illness such as cancer with less than a year to live, for information disclosure regarding poor prognosis, the likely symptoms and problems, and the care options available, to measure variations between countries and to identify factors associated with preferences. Methods A population-based cross-national telephone survey using random digit dialling in seven countries was conducted. Results Among 9344 respondents, data revealed an international preference (73.9%) to always be informed in the scenario of having a serious illness such as cancer with less than a year to live. This varied from 67.6% in Italy to 80.7% in Flanders. A minority (21.1%) did not want such information unless they ask, or at all. People younger than 70 years (OR 0.72, 95% CI 0.62-0.83, p < 0.001), men (OR 1.23, 95% CI 1.10-1.37, p < 0.001), those with experience of illness (OR = 1.20. 95% CI 1.01-1.43, p < 0.05) and with more education (OR = 1.20, 95% CI 1.09-1.32, p < 0.001) were more likely to want to know of limited time left. Conclusions The models confirmed the influence of four factors in more than one country (age, gender, education and most concerning problem) and added 11 country-specific factors to which national policies and clinical practice should respond. These findings confirm a majority public preference to be informed in a scenario of poor prognosis. Policy clinical practice should facilitate elucidation and delivery of preferences. Evidence for effective communication skills-building interventions for clinicians is required. Copyright © 2013 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=90527878 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1002/pon.3283 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 8 StartPage: 2298 Subjects: – SubjectFull: Cancer prognosis Type: general – SubjectFull: Terminally ill Type: general – SubjectFull: Mortality Type: general – SubjectFull: Clinical medicine Type: general – SubjectFull: Clinical pharmacology Type: general – SubjectFull: Medical informatics Type: general Titles: – TitleFull: If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Harding, R. – PersonEntity: Name: NameFull: Simms, V. – PersonEntity: Name: NameFull: Calanzani, N. – PersonEntity: Name: NameFull: Higginson, I. J. – PersonEntity: Name: NameFull: Hall, S. – PersonEntity: Name: NameFull: Gysels, M. – PersonEntity: Name: NameFull: Meñaca, A. – PersonEntity: Name: NameFull: Bausewein, C. – PersonEntity: Name: NameFull: Deliens, L. – PersonEntity: Name: NameFull: Ferreira, P. – PersonEntity: Name: NameFull: Toscani, F. – PersonEntity: Name: NameFull: Daveson, B. A. – PersonEntity: Name: NameFull: Ceulemans, L. – PersonEntity: Name: NameFull: Gomes, B. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 10 Text: Oct2013 Type: published Y: 2013 Identifiers: – Type: issn-print Value: 10579249 Numbering: – Type: volume Value: 22 – Type: issue Value: 10 Titles: – TitleFull: Psycho-Oncology Type: main |
| ResultId | 1 |
