Assessment of quality of life in children and youth with autism spectrum disorder: a critical review.
Saved in:
| Title: | Assessment of quality of life in children and youth with autism spectrum disorder: a critical review. |
|---|---|
| Authors: | Ikeda, Erika, Hinckson, Erica, Krägeloh, Chris |
| Source: | Quality of Life Research. May2014, Vol. 23 Issue 4, p1069-1085. 17p. |
| Subjects: | Quality of life, Autism spectrum disorders in children, Diseases in adults, Self-evaluation, Social skills, Comparative studies, Full-text databases |
| Abstract: | Purpose: To review the use of quality of life (QOL) measures utilised in children and youth with autism spectrum disorder (ASD). Methods: Relevant articles were identified through database searches using MEDLINE, CINAHL Plus with Full Text and SPORTDiscus with Full Text via EBSCO Health Database, PsycINFO and ProQuest Health and Medicine (from 2000 to May 2013). Original research articles were included that measured QOL in children and youth with ASD aged 5-20 years. Searches were limited to articles from peer-reviewed journals, in English or German, and those available in full text. Results: The search identified 1,165 titles and 13 met the inclusion criteria. The review identified a number of QOL measures used in children and youth with ASD, with the most common one being the Pediatric Quality of Life Inventory™ (PedsQL). QOL measures using self-reports were uncommon, and the reliability and validity of QOL measures were not sufficiently reported for this population. Large discrepancies in QOL scores were found between self-reports and proxy-reports. Despite the differences in study design and methodological quality, there was consistency in the results among studies; children and youth with ASD provided lower QOL scores, particularly for social domains, compared to their healthy counterparts. Conclusions: The PedsQL is likely to be an appropriate QOL measure for use in children and youth with ASD. Future research should focus on examining the appropriateness, reliability and validity of QOL self-reports for use in this population. [ABSTRACT FROM AUTHOR] |
| Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
|---|---|
| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 95064556 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
| IllustrationInfo | |
| Items | – Name: Title Label: Title Group: Ti Data: Assessment of quality of life in children and youth with autism spectrum disorder: a critical review. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Ikeda%2C+Erika%22">Ikeda, Erika</searchLink><br /><searchLink fieldCode="AR" term="%22Hinckson%2C+Erica%22">Hinckson, Erica</searchLink><br /><searchLink fieldCode="AR" term="%22Krägeloh%2C+Chris%22">Krägeloh, Chris</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. May2014, Vol. 23 Issue 4, p1069-1085. 17p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Autism+spectrum+disorders+in+children%22">Autism spectrum disorders in children</searchLink><br /><searchLink fieldCode="DE" term="%22Diseases+in+adults%22">Diseases in adults</searchLink><br /><searchLink fieldCode="DE" term="%22Self-evaluation%22">Self-evaluation</searchLink><br /><searchLink fieldCode="DE" term="%22Social+skills%22">Social skills</searchLink><br /><searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br /><searchLink fieldCode="DE" term="%22Full-text+databases%22">Full-text databases</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Purpose: To review the use of quality of life (QOL) measures utilised in children and youth with autism spectrum disorder (ASD). Methods: Relevant articles were identified through database searches using MEDLINE, CINAHL Plus with Full Text and SPORTDiscus with Full Text via EBSCO Health Database, PsycINFO and ProQuest Health and Medicine (from 2000 to May 2013). Original research articles were included that measured QOL in children and youth with ASD aged 5-20 years. Searches were limited to articles from peer-reviewed journals, in English or German, and those available in full text. Results: The search identified 1,165 titles and 13 met the inclusion criteria. The review identified a number of QOL measures used in children and youth with ASD, with the most common one being the Pediatric Quality of Life Inventory™ (PedsQL). QOL measures using self-reports were uncommon, and the reliability and validity of QOL measures were not sufficiently reported for this population. Large discrepancies in QOL scores were found between self-reports and proxy-reports. Despite the differences in study design and methodological quality, there was consistency in the results among studies; children and youth with ASD provided lower QOL scores, particularly for social domains, compared to their healthy counterparts. Conclusions: The PedsQL is likely to be an appropriate QOL measure for use in children and youth with ASD. Future research should focus on examining the appropriateness, reliability and validity of QOL self-reports for use in this population. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=95064556 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s11136-013-0591-6 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 17 StartPage: 1069 Subjects: – SubjectFull: Quality of life Type: general – SubjectFull: Autism spectrum disorders in children Type: general – SubjectFull: Diseases in adults Type: general – SubjectFull: Self-evaluation Type: general – SubjectFull: Social skills Type: general – SubjectFull: Comparative studies Type: general – SubjectFull: Full-text databases Type: general Titles: – TitleFull: Assessment of quality of life in children and youth with autism spectrum disorder: a critical review. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Ikeda, Erika – PersonEntity: Name: NameFull: Hinckson, Erica – PersonEntity: Name: NameFull: Krägeloh, Chris IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 05 Text: May2014 Type: published Y: 2014 Identifiers: – Type: issn-print Value: 09629343 Numbering: – Type: volume Value: 23 – Type: issue Value: 4 Titles: – TitleFull: Quality of Life Research Type: main |
| ResultId | 1 |
