Burden of adult neurofibromatosis 1: development and validation of a burden assessment tool.
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| Title: | Burden of adult neurofibromatosis 1: development and validation of a burden assessment tool. |
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| Authors: | Armand, Marie-Laure1 marie-laure.armand@aphp.fr, Taieb, Charles2 charles.taieb@emma.clinic, Bourgeois, Aline1 aline.bourgeois@aphp.fr, Bourlier, Mireille3 mireille.bourlier@free.fr, Bennani, Mohammed4 mohammed.benani@qualees.fr, Bodemer, Christine2,5 christine.bodemer@aphp.fr, Wolkenstein, Pierre1 pierre.wolkenstein@aphp.fr, along with the French national network on rare skin diseases (FIMARAD) (CORPORATE AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 5/3/2019, Vol. 14 Issue 1, pN.PAG-N.PAG. 1p. |
| Database: | Academic Search Ultimate |
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| ISSN: | 17501172 |
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| DOI: | 10.1186/s13023-019-1067-8 |
