Burden of adult neurofibromatosis 1: development and validation of a burden assessment tool.
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| Title: | Burden of adult neurofibromatosis 1: development and validation of a burden assessment tool. |
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| Authors: | Armand, Marie-Laure1 marie-laure.armand@aphp.fr, Taieb, Charles2 charles.taieb@emma.clinic, Bourgeois, Aline1 aline.bourgeois@aphp.fr, Bourlier, Mireille3 mireille.bourlier@free.fr, Bennani, Mohammed4 mohammed.benani@qualees.fr, Bodemer, Christine2,5 christine.bodemer@aphp.fr, Wolkenstein, Pierre1 pierre.wolkenstein@aphp.fr, along with the French national network on rare skin diseases (FIMARAD) (CORPORATE AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 5/3/2019, Vol. 14 Issue 1, pN.PAG-N.PAG. 1p. |
| Database: | Academic Search Ultimate |
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| FullText | Links: – Type: pdflink Text: Availability: 1 |
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| Header | DbId: asn DbLabel: Academic Search Ultimate An: 136223160 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Burden of adult neurofibromatosis 1: development and validation of a burden assessment tool. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Armand%2C+Marie-Laure%22">Armand, Marie-Laure</searchLink><relatesTo>1</relatesTo><i> marie-laure.armand@aphp.fr</i><br /><searchLink fieldCode="AR" term="%22Taieb%2C+Charles%22">Taieb, Charles</searchLink><relatesTo>2</relatesTo><i> charles.taieb@emma.clinic</i><br /><searchLink fieldCode="AR" term="%22Bourgeois%2C+Aline%22">Bourgeois, Aline</searchLink><relatesTo>1</relatesTo><i> aline.bourgeois@aphp.fr</i><br /><searchLink fieldCode="AR" term="%22Bourlier%2C+Mireille%22">Bourlier, Mireille</searchLink><relatesTo>3</relatesTo><i> mireille.bourlier@free.fr</i><br /><searchLink fieldCode="AR" term="%22Bennani%2C+Mohammed%22">Bennani, Mohammed</searchLink><relatesTo>4</relatesTo><i> mohammed.benani@qualees.fr</i><br /><searchLink fieldCode="AR" term="%22Bodemer%2C+Christine%22">Bodemer, Christine</searchLink><relatesTo>2,5</relatesTo><i> christine.bodemer@aphp.fr</i><br /><searchLink fieldCode="AR" term="%22Wolkenstein%2C+Pierre%22">Wolkenstein, Pierre</searchLink><relatesTo>1</relatesTo><i> pierre.wolkenstein@aphp.fr</i><br /><searchLink fieldCode="AR" term="%22along+with+the+French+national+network+on+rare+skin+diseases+%28FIMARAD%29%22">along with the French national network on rare skin diseases (FIMARAD)</searchLink> (CORPORATE AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 5/3/2019, Vol. 14 Issue 1, pN.PAG-N.PAG. 1p. |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=136223160 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1186/s13023-019-1067-8 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 1 StartPage: N.PAG Titles: – TitleFull: Burden of adult neurofibromatosis 1: development and validation of a burden assessment tool. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Armand, Marie-Laure – PersonEntity: Name: NameFull: Taieb, Charles – PersonEntity: Name: NameFull: Bourgeois, Aline – PersonEntity: Name: NameFull: Bourlier, Mireille – PersonEntity: Name: NameFull: Bennani, Mohammed – PersonEntity: Name: NameFull: Bodemer, Christine – PersonEntity: Name: NameFull: Wolkenstein, Pierre – PersonEntity: Name: NameFull: along with the French national network on rare skin diseases (FIMARAD) IsPartOfRelationships: – BibEntity: Dates: – D: 03 M: 05 Text: 5/3/2019 Type: published Y: 2019 Identifiers: – Type: issn-print Value: 17501172 Numbering: – Type: volume Value: 14 – Type: issue Value: 1 Titles: – TitleFull: Orphanet Journal of Rare Diseases Type: main |
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