Availability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network.
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| Title: | Availability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network. |
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| Authors: | Heard, Jean-Michel1 (AUTHOR) jean-michel.heard@metab.ern-net.eu, Vrinten, Charlotte2 (AUTHOR), Schlander, Michael3 (AUTHOR), Bellettato, Cinzia Maria1 (AUTHOR), van Lingen, Corine1 (AUTHOR), Scarpa, Maurizio1 (AUTHOR), the MetabERN collaboration group (AUTHOR), Matthijs, Gert (AUTHOR), Nassogne, Marie-Cécile (AUTHOR), Debray, François-Guillaume (AUTHOR), Roland, Dominique (AUTHOR), Chamova, Teodora (AUTHOR), Kozich, Viktor (AUTHOR), Pavel, Jesina (AUTHOR), Zenker, Martin (AUTHOR), Lampe, Christina (AUTHOR), Das, Anihb Martin (AUTHOR), Hennermann, Julia (AUTHOR), Kölker, Stefan (AUTHOR), Weinhold, Natalie (AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 1/6/2020, Vol. 15 Issue 1, p1-10. 10p. |
| Database: | Academic Search Ultimate |
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| ISSN: | 17501172 |
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| DOI: | 10.1186/s13023-019-1280-5 |
