Availability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network.
Saved in:
| Title: | Availability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network. |
|---|---|
| Authors: | Heard, Jean-Michel1 (AUTHOR) jean-michel.heard@metab.ern-net.eu, Vrinten, Charlotte2 (AUTHOR), Schlander, Michael3 (AUTHOR), Bellettato, Cinzia Maria1 (AUTHOR), van Lingen, Corine1 (AUTHOR), Scarpa, Maurizio1 (AUTHOR), the MetabERN collaboration group (AUTHOR), Matthijs, Gert (AUTHOR), Nassogne, Marie-Cécile (AUTHOR), Debray, François-Guillaume (AUTHOR), Roland, Dominique (AUTHOR), Chamova, Teodora (AUTHOR), Kozich, Viktor (AUTHOR), Pavel, Jesina (AUTHOR), Zenker, Martin (AUTHOR), Lampe, Christina (AUTHOR), Das, Anihb Martin (AUTHOR), Hennermann, Julia (AUTHOR), Kölker, Stefan (AUTHOR), Weinhold, Natalie (AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 1/6/2020, Vol. 15 Issue 1, p1-10. 10p. |
| Database: | Academic Search Ultimate |
|
Full text is not displayed to guests.
Login for full access.
|
|
| FullText | Links: – Type: pdflink Text: Availability: 1 |
|---|---|
| Header | DbId: asn DbLabel: Academic Search Ultimate An: 141078062 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
| IllustrationInfo | |
| Items | – Name: Title Label: Title Group: Ti Data: Availability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Heard%2C+Jean-Michel%22">Heard, Jean-Michel</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> jean-michel.heard@metab.ern-net.eu</i><br /><searchLink fieldCode="AR" term="%22Vrinten%2C+Charlotte%22">Vrinten, Charlotte</searchLink><relatesTo>2</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Schlander%2C+Michael%22">Schlander, Michael</searchLink><relatesTo>3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Bellettato%2C+Cinzia+Maria%22">Bellettato, Cinzia Maria</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22van+Lingen%2C+Corine%22">van Lingen, Corine</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Scarpa%2C+Maurizio%22">Scarpa, Maurizio</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22the+MetabERN+collaboration+group%22">the MetabERN collaboration group</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Matthijs%2C+Gert%22">Matthijs, Gert</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Nassogne%2C+Marie-Cécile%22">Nassogne, Marie-Cécile</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Debray%2C+François-Guillaume%22">Debray, François-Guillaume</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Roland%2C+Dominique%22">Roland, Dominique</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Chamova%2C+Teodora%22">Chamova, Teodora</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kozich%2C+Viktor%22">Kozich, Viktor</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Pavel%2C+Jesina%22">Pavel, Jesina</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Zenker%2C+Martin%22">Zenker, Martin</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lampe%2C+Christina%22">Lampe, Christina</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Das%2C+Anihb+Martin%22">Das, Anihb Martin</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Hennermann%2C+Julia%22">Hennermann, Julia</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kölker%2C+Stefan%22">Kölker, Stefan</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Weinhold%2C+Natalie%22">Weinhold, Natalie</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 1/6/2020, Vol. 15 Issue 1, p1-10. 10p. |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=141078062 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1186/s13023-019-1280-5 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 10 StartPage: 1 Titles: – TitleFull: Availability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Heard, Jean-Michel – PersonEntity: Name: NameFull: Vrinten, Charlotte – PersonEntity: Name: NameFull: Schlander, Michael – PersonEntity: Name: NameFull: Bellettato, Cinzia Maria – PersonEntity: Name: NameFull: van Lingen, Corine – PersonEntity: Name: NameFull: Scarpa, Maurizio – PersonEntity: Name: NameFull: the MetabERN collaboration group – PersonEntity: Name: NameFull: Matthijs, Gert – PersonEntity: Name: NameFull: Nassogne, Marie-Cécile – PersonEntity: Name: NameFull: Debray, François-Guillaume – PersonEntity: Name: NameFull: Roland, Dominique – PersonEntity: Name: NameFull: Chamova, Teodora – PersonEntity: Name: NameFull: Kozich, Viktor – PersonEntity: Name: NameFull: Pavel, Jesina – PersonEntity: Name: NameFull: Zenker, Martin – PersonEntity: Name: NameFull: Lampe, Christina – PersonEntity: Name: NameFull: Das, Anihb Martin – PersonEntity: Name: NameFull: Hennermann, Julia – PersonEntity: Name: NameFull: Kölker, Stefan – PersonEntity: Name: NameFull: Weinhold, Natalie IsPartOfRelationships: – BibEntity: Dates: – D: 06 M: 01 Text: 1/6/2020 Type: published Y: 2020 Identifiers: – Type: issn-print Value: 17501172 Numbering: – Type: volume Value: 15 – Type: issue Value: 1 Titles: – TitleFull: Orphanet Journal of Rare Diseases Type: main |
| ResultId | 1 |
