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Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ©).

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Title: Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ©).
Authors: Kaiser, Karen (AUTHOR), Yount, Susan E (AUTHOR), Martens, Christa E (AUTHOR), Webster, Kimberly A (AUTHOR), Shaunfield, Sara (AUTHOR), Sparling, Amy (AUTHOR), Peipert, John Devin (AUTHOR), Cella, David (AUTHOR), Rottinghaus, Scott T (AUTHOR), Donato, Bonnie MK (AUTHOR), Wells, Richard (AUTHOR), Tomazos, Ioannis (AUTHOR)
Source: Patient Preference & Adherence. Apr2020, Vol. 14, p705-715. 11p.
Database: Academic Search Ultimate
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  Data: Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ©).
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  Data: <searchLink fieldCode="JN" term="%22Patient+Preference+%26+Adherence%22">Patient Preference & Adherence</searchLink>. Apr2020, Vol. 14, p705-715. 11p.
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=143134278
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