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Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study.

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Bibliographic Details
Title: Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study.
Authors: Gill, Liz1 (AUTHOR), Burrell, Sue1 (AUTHOR), Chamberlayne, John1 (AUTHOR), Lombardelli, Stephen2 (AUTHOR) slombardelli@alnylam.com, Mora, Jordanna3 (AUTHOR), Mason, Nicola4 (AUTHOR), Schurer, Marieke5 (AUTHOR), Merkel, Madeline3 (AUTHOR), Meninger, Stephen3 (AUTHOR), Ko, John J.3 (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 4/26/2021, Vol. 16 Issue 1, p1-14. 14p.
Database: Academic Search Ultimate
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Description
ISSN:17501172
DOI:10.1186/s13023-021-01816-2