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Development of a standard of care for patients with valosin-containing protein associated multisystem proteinopathy.

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Bibliographic Details
Title: Development of a standard of care for patients with valosin-containing protein associated multisystem proteinopathy.
Authors: Korb, Manisha1 (AUTHOR) mkak@uci.edu, Peck, Allison2 (AUTHOR), Alfano, Lindsay N.3 (AUTHOR), Berger, Kenneth I.4 (AUTHOR), James, Meredith K.5 (AUTHOR), Ghoshal, Nupur6 (AUTHOR), Healzer, Elise7 (AUTHOR), Henchcliffe, Claire1 (AUTHOR), Khan, Shaida8 (AUTHOR), Mammen, Pradeep P. A.9 (AUTHOR), Patel, Sujata10 (AUTHOR), Pfeffer, Gerald11 (AUTHOR), Ralston, Stuart H.12 (AUTHOR), Roy, Bhaskar13 (AUTHOR), Seeley, William W.14 (AUTHOR), Swenson, Andrea15 (AUTHOR), Mozaffar, Tahseen1,16 (AUTHOR), Weihl, Conrad17,18 (AUTHOR), Kimonis, Virginia16,19 (AUTHOR), the VCP Standards of Care Working Group (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 1/29/2022, Vol. 17 Issue 1, p1-15. 15p.
Database: Academic Search Ultimate
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Description
ISSN:17501172
DOI:10.1186/s13023-022-02172-5