Development of a standard of care for patients with valosin-containing protein associated multisystem proteinopathy.
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| Title: | Development of a standard of care for patients with valosin-containing protein associated multisystem proteinopathy. |
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| Authors: | Korb, Manisha1 (AUTHOR) mkak@uci.edu, Peck, Allison2 (AUTHOR), Alfano, Lindsay N.3 (AUTHOR), Berger, Kenneth I.4 (AUTHOR), James, Meredith K.5 (AUTHOR), Ghoshal, Nupur6 (AUTHOR), Healzer, Elise7 (AUTHOR), Henchcliffe, Claire1 (AUTHOR), Khan, Shaida8 (AUTHOR), Mammen, Pradeep P. A.9 (AUTHOR), Patel, Sujata10 (AUTHOR), Pfeffer, Gerald11 (AUTHOR), Ralston, Stuart H.12 (AUTHOR), Roy, Bhaskar13 (AUTHOR), Seeley, William W.14 (AUTHOR), Swenson, Andrea15 (AUTHOR), Mozaffar, Tahseen1,16 (AUTHOR), Weihl, Conrad17,18 (AUTHOR), Kimonis, Virginia16,19 (AUTHOR), the VCP Standards of Care Working Group (AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 1/29/2022, Vol. 17 Issue 1, p1-15. 15p. |
| Database: | Academic Search Ultimate |
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| FullText | Links: – Type: pdflink Text: Availability: 1 |
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| Header | DbId: asn DbLabel: Academic Search Ultimate An: 154979836 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Development of a standard of care for patients with valosin-containing protein associated multisystem proteinopathy. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Korb%2C+Manisha%22">Korb, Manisha</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> mkak@uci.edu</i><br /><searchLink fieldCode="AR" term="%22Peck%2C+Allison%22">Peck, Allison</searchLink><relatesTo>2</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Alfano%2C+Lindsay+N%2E%22">Alfano, Lindsay N.</searchLink><relatesTo>3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Berger%2C+Kenneth+I%2E%22">Berger, Kenneth I.</searchLink><relatesTo>4</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22James%2C+Meredith+K%2E%22">James, Meredith K.</searchLink><relatesTo>5</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ghoshal%2C+Nupur%22">Ghoshal, Nupur</searchLink><relatesTo>6</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Healzer%2C+Elise%22">Healzer, Elise</searchLink><relatesTo>7</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Henchcliffe%2C+Claire%22">Henchcliffe, Claire</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Khan%2C+Shaida%22">Khan, Shaida</searchLink><relatesTo>8</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Mammen%2C+Pradeep+P%2E+A%2E%22">Mammen, Pradeep P. A.</searchLink><relatesTo>9</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Patel%2C+Sujata%22">Patel, Sujata</searchLink><relatesTo>10</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Pfeffer%2C+Gerald%22">Pfeffer, Gerald</searchLink><relatesTo>11</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ralston%2C+Stuart+H%2E%22">Ralston, Stuart H.</searchLink><relatesTo>12</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Roy%2C+Bhaskar%22">Roy, Bhaskar</searchLink><relatesTo>13</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Seeley%2C+William+W%2E%22">Seeley, William W.</searchLink><relatesTo>14</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Swenson%2C+Andrea%22">Swenson, Andrea</searchLink><relatesTo>15</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Mozaffar%2C+Tahseen%22">Mozaffar, Tahseen</searchLink><relatesTo>1,16</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Weihl%2C+Conrad%22">Weihl, Conrad</searchLink><relatesTo>17,18</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kimonis%2C+Virginia%22">Kimonis, Virginia</searchLink><relatesTo>16,19</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22the+VCP+Standards+of+Care+Working+Group%22">the VCP Standards of Care Working Group</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 1/29/2022, Vol. 17 Issue 1, p1-15. 15p. |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=154979836 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1186/s13023-022-02172-5 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 15 StartPage: 1 Titles: – TitleFull: Development of a standard of care for patients with valosin-containing protein associated multisystem proteinopathy. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Korb, Manisha – PersonEntity: Name: NameFull: Peck, Allison – PersonEntity: Name: NameFull: Alfano, Lindsay N. – PersonEntity: Name: NameFull: Berger, Kenneth I. – PersonEntity: Name: NameFull: James, Meredith K. – PersonEntity: Name: NameFull: Ghoshal, Nupur – PersonEntity: Name: NameFull: Healzer, Elise – PersonEntity: Name: NameFull: Henchcliffe, Claire – PersonEntity: Name: NameFull: Khan, Shaida – PersonEntity: Name: NameFull: Mammen, Pradeep P. A. – PersonEntity: Name: NameFull: Patel, Sujata – PersonEntity: Name: NameFull: Pfeffer, Gerald – PersonEntity: Name: NameFull: Ralston, Stuart H. – PersonEntity: Name: NameFull: Roy, Bhaskar – PersonEntity: Name: NameFull: Seeley, William W. – PersonEntity: Name: NameFull: Swenson, Andrea – PersonEntity: Name: NameFull: Mozaffar, Tahseen – PersonEntity: Name: NameFull: Weihl, Conrad – PersonEntity: Name: NameFull: Kimonis, Virginia – PersonEntity: Name: NameFull: the VCP Standards of Care Working Group IsPartOfRelationships: – BibEntity: Dates: – D: 29 M: 01 Text: 1/29/2022 Type: published Y: 2022 Identifiers: – Type: issn-print Value: 17501172 Numbering: – Type: volume Value: 17 – Type: issue Value: 1 Titles: – TitleFull: Orphanet Journal of Rare Diseases Type: main |
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