View in EDS HTML Full Text PDF Full Text

Convergence of patient- and physician-reported outcomes in the French National Registry of Facioscapulohumeral Dystrophy.

Saved in:
Bibliographic Details
Title: Convergence of patient- and physician-reported outcomes in the French National Registry of Facioscapulohumeral Dystrophy.
Authors: Sanson, Benoît1 (AUTHOR) sanson.b@chu-nice.fr, Stalens, Caroline2 (AUTHOR), Guien, Céline3 (AUTHOR), Villa, Luisa1 (AUTHOR), Eng, Catherine2 (AUTHOR), Rabarimeriarijaona, Sitraka4 (AUTHOR), Bernard, Rafaëlle4 (AUTHOR), Cintas, Pascal5 (AUTHOR), Solé, Guilhem6 (AUTHOR), Tiffreau, Vincent7 (AUTHOR), Echaniz-Laguna, Andoni8,9,10 (AUTHOR), Magot, Armelle11 (AUTHOR), Juntas Morales, Raul12 (AUTHOR), Boyer, François Constant13 (AUTHOR), Nadaj-Pakleza, Aleksandra14,15 (AUTHOR), Jacquin-Piques, Agnès16 (AUTHOR), Béroud, Christophe3,4 (AUTHOR), Sacconi, Sabrina1,17 (AUTHOR), The French FSHD registry collaboration group (AUTHOR), Acket, Blandine (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 3/2/2022, Vol. 17 Issue 1, p1-12. 12p.
Database: Academic Search Ultimate
Full text is not displayed to guests.
Description
ISSN:17501172
DOI:10.1186/s13023-021-01793-6