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Convergence of patient- and physician-reported outcomes in the French National Registry of Facioscapulohumeral Dystrophy.

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Title: Convergence of patient- and physician-reported outcomes in the French National Registry of Facioscapulohumeral Dystrophy.
Authors: Sanson, Benoît1 (AUTHOR) sanson.b@chu-nice.fr, Stalens, Caroline2 (AUTHOR), Guien, Céline3 (AUTHOR), Villa, Luisa1 (AUTHOR), Eng, Catherine2 (AUTHOR), Rabarimeriarijaona, Sitraka4 (AUTHOR), Bernard, Rafaëlle4 (AUTHOR), Cintas, Pascal5 (AUTHOR), Solé, Guilhem6 (AUTHOR), Tiffreau, Vincent7 (AUTHOR), Echaniz-Laguna, Andoni8,9,10 (AUTHOR), Magot, Armelle11 (AUTHOR), Juntas Morales, Raul12 (AUTHOR), Boyer, François Constant13 (AUTHOR), Nadaj-Pakleza, Aleksandra14,15 (AUTHOR), Jacquin-Piques, Agnès16 (AUTHOR), Béroud, Christophe3,4 (AUTHOR), Sacconi, Sabrina1,17 (AUTHOR), The French FSHD registry collaboration group (AUTHOR), Acket, Blandine (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 3/2/2022, Vol. 17 Issue 1, p1-12. 12p.
Database: Academic Search Ultimate
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  Data: Convergence of patient- and physician-reported outcomes in the French National Registry of Facioscapulohumeral Dystrophy.
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  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 3/2/2022, Vol. 17 Issue 1, p1-12. 12p.
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=155548780
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              Text: 3/2/2022
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