The road to successful people-centric research in rare diseases: the web-based case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ).
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| Title: | The road to successful people-centric research in rare diseases: the web-based case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ). |
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| Authors: | Francisco, Rita1,2,3 (AUTHOR), Brasil, Sandra1,2,3 (AUTHOR), Pascoal, Carlota1,2,3 (AUTHOR), Jaeken, Jaak1,4 (AUTHOR), Liddle, Merell1 (AUTHOR), Videira, Paula A.1,2,3 (AUTHOR), dos Reis Ferreira, Vanessa1,2,3 (AUTHOR) sindromecdg@gmail.com |
| Source: | Orphanet Journal of Rare Diseases. 3/24/2022, Vol. 17 Issue 1, p1-18. 18p. |
| Database: | Academic Search Ultimate |
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| ISSN: | 17501172 |
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| DOI: | 10.1186/s13023-022-02286-w |
