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Real-world evidence in achondroplasia: considerations for a standardized data set.

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Title: Real-world evidence in achondroplasia: considerations for a standardized data set.
Authors: Alanay, Yasemin1 (AUTHOR) yasemin.alanay@acibadem.edu.tr, Mohnike, Klaus2 (AUTHOR), Nilsson, Ola3,4,5 (AUTHOR), Alves, Inês6 (AUTHOR), AlSayed, Moeenaldeen7,8 (AUTHOR), Appelman-Dijkstra, Natasha M.9 (AUTHOR), Baujat, Genevieve10 (AUTHOR), Ben-Omran, Tawfeg11 (AUTHOR), Breyer, Sandra12 (AUTHOR), Cormier-Daire, Valerie10,13 (AUTHOR), Gregersen, Pernille Axél14 (AUTHOR), Guillén-Navarro, Encarna15 (AUTHOR), Högler, Wolfgang16 (AUTHOR), Maghnie, Mohamad17,18 (AUTHOR), Mukherjee, Swati19 (AUTHOR), Cohen, Shelda19 (AUTHOR), Pimenta, Jeanne19 (AUTHOR), Selicorni, Angelo20 (AUTHOR), Semler, J. Oliver21,22 (AUTHOR), Sigaudy, Sabine23 (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 6/26/2023, Vol. 18 Issue 1, p1-9. 9p.
Database: Academic Search Ultimate
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ISSN:17501172
DOI:10.1186/s13023-023-02755-w