Scoping review of the recommendations and guidance for improving the quality of rare disease registries.
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| Title: | Scoping review of the recommendations and guidance for improving the quality of rare disease registries. |
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| Authors: | Tarride, JE1,2,3 (AUTHOR), Okoh, A.1 (AUTHOR), Aryal, K.1 (AUTHOR), Prada, C.1 (AUTHOR), Milinkovic, Deborah2 (AUTHOR) milinkda@mcmaster.ca, Keepanasseril, A.1 (AUTHOR), Iorio, A.1 (AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 5/6/2024, Vol. 19 Issue 1, p1-13. 13p. |
| Database: | Academic Search Ultimate |
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| ISSN: | 17501172 |
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| DOI: | 10.1186/s13023-024-03193-y |
