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Burden of illness in Rett syndrome: initial evaluation of a disorder-specific caregiver survey.

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Bibliographic Details
Title: Burden of illness in Rett syndrome: initial evaluation of a disorder-specific caregiver survey.
Authors: Kaufmann, Walter E.1,2 (AUTHOR) walter.e.kaufmann@emory.edu, Percy, Alan K.3 (AUTHOR), Neul, Jeffrey L.4 (AUTHOR), Downs, Jenny5 (AUTHOR), Leonard, Helen5 (AUTHOR), Nues, Paige6 (AUTHOR), Sharma, Girish D.7 (AUTHOR), Bartolotta, Theresa E.8 (AUTHOR), Townend, Gillian S.9 (AUTHOR), Curfs, Leopold M. G.9 (AUTHOR), Mariotti, Orietta10 (AUTHOR), Buda, Claude11 (AUTHOR), O'Leary, Heather M.1 (AUTHOR), Oberman, Lindsay M.12 (AUTHOR), Vogel-Farley, Vanessa1 (AUTHOR), Barnes, Katherine V.1 (AUTHOR), Missling, Christopher U.1 (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 8/13/2024, Vol. 19 Issue 1, p1-14. 14p.
Database: Academic Search Ultimate
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Description
ISSN:17501172
DOI:10.1186/s13023-024-03313-8