My A–T pack: a qualitative study of the utility, acceptability, design, and content of a family-designed and owned information pack relevant to the lives of children and young people living with ataxia telangiectasia.
Saved in:
| Title: | My A–T pack: a qualitative study of the utility, acceptability, design, and content of a family-designed and owned information pack relevant to the lives of children and young people living with ataxia telangiectasia. |
|---|---|
| Authors: | Khan, Munira1,2 (AUTHOR), Cassidy, Elizabeth3 (AUTHOR), Parkin, Tracey1 (AUTHOR), Wallace, Amanda1 (AUTHOR), Carter, Bernie4 (AUTHOR), Whitehouse, William5 (AUTHOR), Munro, James6 (AUTHOR), Paton, Joanne1 (AUTHOR), Bunn, Lisa1 (AUTHOR) lisa.bunn@plymouth.ac.uk |
| Source: | Orphanet Journal of Rare Diseases. 8/4/2025, Vol. 20 Issue 1, p1-11. 11p. |
| Database: | Academic Search Ultimate |
|
Full text is not displayed to guests.
Login for full access.
|
|
| ISSN: | 17501172 |
|---|---|
| DOI: | 10.1186/s13023-025-03919-6 |
