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My A–T pack: a qualitative study of the utility, acceptability, design, and content of a family-designed and owned information pack relevant to the lives of children and young people living with ataxia telangiectasia.

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Title: My A–T pack: a qualitative study of the utility, acceptability, design, and content of a family-designed and owned information pack relevant to the lives of children and young people living with ataxia telangiectasia.
Authors: Khan, Munira1,2 (AUTHOR), Cassidy, Elizabeth3 (AUTHOR), Parkin, Tracey1 (AUTHOR), Wallace, Amanda1 (AUTHOR), Carter, Bernie4 (AUTHOR), Whitehouse, William5 (AUTHOR), Munro, James6 (AUTHOR), Paton, Joanne1 (AUTHOR), Bunn, Lisa1 (AUTHOR) lisa.bunn@plymouth.ac.uk
Source: Orphanet Journal of Rare Diseases. 8/4/2025, Vol. 20 Issue 1, p1-11. 11p.
Database: Academic Search Ultimate
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  Data: My A–T pack: a qualitative study of the utility, acceptability, design, and content of a family-designed and owned information pack relevant to the lives of children and young people living with ataxia telangiectasia.
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  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 8/4/2025, Vol. 20 Issue 1, p1-11. 11p.
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=187118362
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