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Addressing psychosocial vulnerability in rare diseases: a call to action from a European expert consensus study.

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Title: Addressing psychosocial vulnerability in rare diseases: a call to action from a European expert consensus study.
Authors: Smits, Rosanne M.1,2 (AUTHOR), Aerts, Aukje1 (AUTHOR), Angelov, Teodor3 (AUTHOR), Bentele, Marissa4 (AUTHOR), de Blaauw, Ivo5 (AUTHOR), Dellenmark-Blom, Michaela6,7,8 (AUTHOR), Duijts, Saskia F. A.9 (AUTHOR), Fjermestad, Krister10,11 (AUTHOR), Franscini, Monica12 (AUTHOR), Grano, Caterina13 (AUTHOR), Hendriks, Sigrid14 (AUTHOR), Inhestern, Laura15,16 (AUTHOR), Kenny, Thomas17 (AUTHOR), von der Lippe, Charlotte18 (AUTHOR), Oomen, Loes19 (AUTHOR), Rake, Jan Peter20 (AUTHOR), Rietman, Andre B.2 (AUTHOR), van Rooij, Iris A. L. M.21 (AUTHOR), Verhaak, Chris M.1 (AUTHOR) chris.verhaak@radboudumc.nl, Voet, Nicoline B. M.22,23 (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 10/27/2025, Vol. 20 Issue 1, p1-8. 8p.
Database: Academic Search Ultimate
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Description
ISSN:17501172
DOI:10.1186/s13023-025-04017-3