The influence of professionals' personal views and values in the development of guidelines for rare diseases: an example from phenylketonuria.

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Bibliographic Details
Title: The influence of professionals' personal views and values in the development of guidelines for rare diseases: an example from phenylketonuria.
Authors: van Wegberg, Annemiek M. J.1 (AUTHOR), Romani, Cristina2 (AUTHOR), van Spronsen, Francjan J.1 (AUTHOR) f.j.van.spronsen@umcg.nl
Source: Orphanet Journal of Rare Diseases. 11/10/2025, Vol. 20 Issue 1, p1-9. 9p.
Database: Academic Search Ultimate
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ISSN:17501172
DOI:10.1186/s13023-025-03983-y