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The influence of professionals' personal views and values in the development of guidelines for rare diseases: an example from phenylketonuria.

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Title: The influence of professionals' personal views and values in the development of guidelines for rare diseases: an example from phenylketonuria.
Authors: van Wegberg, Annemiek M. J.1 (AUTHOR), Romani, Cristina2 (AUTHOR), van Spronsen, Francjan J.1 (AUTHOR) f.j.van.spronsen@umcg.nl
Source: Orphanet Journal of Rare Diseases. 11/10/2025, Vol. 20 Issue 1, p1-9. 9p.
Database: Academic Search Ultimate
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  Data: The influence of professionals' personal views and values in the development of guidelines for rare diseases: an example from phenylketonuria.
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  Data: <searchLink fieldCode="AR" term="%22van+Wegberg%2C+Annemiek+M%2E+J%2E%22">van Wegberg, Annemiek M. J.</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Romani%2C+Cristina%22">Romani, Cristina</searchLink><relatesTo>2</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22van+Spronsen%2C+Francjan+J%2E%22">van Spronsen, Francjan J.</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> f.j.van.spronsen@umcg.nl</i>
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  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 11/10/2025, Vol. 20 Issue 1, p1-9. 9p.
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=189237439
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      – Type: doi
        Value: 10.1186/s13023-025-03983-y
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        Text: English
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      – TitleFull: The influence of professionals' personal views and values in the development of guidelines for rare diseases: an example from phenylketonuria.
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              Text: 11/10/2025
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              Y: 2025
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