Perceptions of Conflict with Service Providers Among Parents of Young Adults with Complex Support Needs.
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| Title: | Perceptions of Conflict with Service Providers Among Parents of Young Adults with Complex Support Needs. |
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| Authors: | Kildahl, Arvid Nikolai1 (AUTHOR) uxarvk@ous-hf.no, Fürst, Eva Alexandra2 (AUTHOR), Helverschou, Sissel Berge1 (AUTHOR), Munkhaugen, Ellen Kathrine1 (AUTHOR), Oddli, Hanne Weie3 (AUTHOR) |
| Source: | Research & Practice for Persons with Severe Disabilities. Jun2026, Vol. 51 Issue 2, p107-124. 18p. |
| Subject Terms: | *Qualitative research, *Parent-child relationships, *Conflict (Psychology), *Autism, *Experience, *Intellectual disabilities, *Asperger's syndrome, Research funding, Interviewing, Human rights, Thematic analysis, Sound recordings, Unlicensed medical personnel, Parents of children with disabilities, Phenomenology, Psychosocial factors |
| Geographic Terms: | Norway |
| Abstract: | Parental advocacy is important to ensure that individuals with complex support needs (CSN) receive appropriate support. However, parents and service providers may not always agree, resulting in a risk of negative advocacy experiences and potential conflict. Currently, knowledge about how parents perceive and understand these situations is sparse. In this qualitative study conducted in Norway, eight parents of young adults with CSN who had experienced conflict with their child's service providers were interviewed about their perceptions of the conflict, its development and consequences. Using Interpretative Phenomenological Analysis, five themes were identified, two reflecting perceptions of the development of the conflict, and three reflecting the impact of the conflict during and following its occurrence. Conflict was perceived to develop despite the participants' efforts to facilitate collaboration, leaving them feeling terrified, distressed, powerless, and alone. These findings highlight the importance of reducing the risk of conflict between parents and service providers, and suggest that developing a shared understanding of an individual's support needs may be a helpful strategy to facilitate collaboration. Given its importance for individuals with CSN, more research is needed to understand how professionals can make use of parental expertise, including knowledge-based models for relating to parental advocacy. [ABSTRACT FROM AUTHOR] |
| Copyright of Research & Practice for Persons with Severe Disabilities is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Education Research Complete |
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| Abstract: | Parental advocacy is important to ensure that individuals with complex support needs (CSN) receive appropriate support. However, parents and service providers may not always agree, resulting in a risk of negative advocacy experiences and potential conflict. Currently, knowledge about how parents perceive and understand these situations is sparse. In this qualitative study conducted in Norway, eight parents of young adults with CSN who had experienced conflict with their child's service providers were interviewed about their perceptions of the conflict, its development and consequences. Using Interpretative Phenomenological Analysis, five themes were identified, two reflecting perceptions of the development of the conflict, and three reflecting the impact of the conflict during and following its occurrence. Conflict was perceived to develop despite the participants' efforts to facilitate collaboration, leaving them feeling terrified, distressed, powerless, and alone. These findings highlight the importance of reducing the risk of conflict between parents and service providers, and suggest that developing a shared understanding of an individual's support needs may be a helpful strategy to facilitate collaboration. Given its importance for individuals with CSN, more research is needed to understand how professionals can make use of parental expertise, including knowledge-based models for relating to parental advocacy. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 15407969 |
| DOI: | 10.1177/15407969251355129 |
