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Cultural Affordance, Social Relationships, and Narratives of Independence: Understanding the Meaning of Social Care for Adults with Intellectual Disabilities from Minority Ethnic Groups in the UK

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Title: Cultural Affordance, Social Relationships, and Narratives of Independence: Understanding the Meaning of Social Care for Adults with Intellectual Disabilities from Minority Ethnic Groups in the UK
Language: English
Authors: Larkin, Michael (ORCID 0000-0003-3304-7000), Unwin, Gemma, Iyer, Malvika, Tsimopoulou, Ioanna, Zahid, Sofia, Malik, Kulsoom, Stenfert Kroese, Biza, Rose, John L.
Source: International Journal of Developmental Disabilities. 2018 64(3):195-203.
Availability: Routledge. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Peer Reviewed: Y
Page Count: 9
Publication Date: 2018
Document Type: Journal Articles
Reports - Research
Descriptors: Interpersonal Relationship, Minority Groups, Ethnic Groups, Decision Making, Cultural Awareness, Adults, Intellectual Disability, Phenomenology, Self Concept, Delivery Systems, Social Services, Foreign Countries, Personal Narratives, Personal Autonomy, Family Environment, Safety, Psychological Patterns, Cultural Differences, Health Personnel, Caseworkers
Geographic Terms: United Kingdom (England)
DOI: 10.1080/20473869.2018.1469807
ISSN: 2047-3869
Abstract: Objectives: To explore the perspective of adults with intellectual disabilities from minority ethnic groups, on their relationship with social care services. Methods: Thirty-two adults took part in semi-structured interviews. Transcripts were analyzed within a Pluralist framework, adopting the structure of Template Analysis and then drawing on phenomenological, narrative, and discursive approaches. Results: Our participants were generally positive about the services which they received, which they evaluated primarily in terms of their continuing good relationship(s) with specific workers. Our respondents were sophisticated users of cultural resources and identities; the concept of 'cultural affordance' may be useful alternative to 'cultural competence'. We discuss three distinctive narratives about independence (Stability; Progress; Resistance). Each highlights the importance of maintaining connectedness to others, and the crucial role played by ownership of decision-making. Conclusions: We have developed a set of resources which service providers (and researchers) can use with people with intellectual disabilities, in order to support mutual understanding, service planning and delivery.
Abstractor: As Provided
Entry Date: 2018
Accession Number: EJ1226025
Database: ERIC
FullText Text:
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  Data: Cultural Affordance, Social Relationships, and Narratives of Independence: Understanding the Meaning of Social Care for Adults with Intellectual Disabilities from Minority Ethnic Groups in the UK
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  Data: <searchLink fieldCode="AR" term="%22Larkin%2C+Michael%22">Larkin, Michael</searchLink> (ORCID <externalLink term="http://orcid.org/0000-0003-3304-7000">0000-0003-3304-7000</externalLink>)<br /><searchLink fieldCode="AR" term="%22Unwin%2C+Gemma%22">Unwin, Gemma</searchLink><br /><searchLink fieldCode="AR" term="%22Iyer%2C+Malvika%22">Iyer, Malvika</searchLink><br /><searchLink fieldCode="AR" term="%22Tsimopoulou%2C+Ioanna%22">Tsimopoulou, Ioanna</searchLink><br /><searchLink fieldCode="AR" term="%22Zahid%2C+Sofia%22">Zahid, Sofia</searchLink><br /><searchLink fieldCode="AR" term="%22Malik%2C+Kulsoom%22">Malik, Kulsoom</searchLink><br /><searchLink fieldCode="AR" term="%22Stenfert+Kroese%2C+Biza%22">Stenfert Kroese, Biza</searchLink><br /><searchLink fieldCode="AR" term="%22Rose%2C+John+L%2E%22">Rose, John L.</searchLink>
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  Data: <searchLink fieldCode="SO" term="%22International+Journal+of+Developmental+Disabilities%22"><i>International Journal of Developmental Disabilities</i></searchLink>. 2018 64(3):195-203.
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  Data: Routledge. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
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  Data: 9
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  Data: Journal Articles<br />Reports - Research
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  Data: <searchLink fieldCode="DE" term="%22Interpersonal+Relationship%22">Interpersonal Relationship</searchLink><br /><searchLink fieldCode="DE" term="%22Minority+Groups%22">Minority Groups</searchLink><br /><searchLink fieldCode="DE" term="%22Ethnic+Groups%22">Ethnic Groups</searchLink><br /><searchLink fieldCode="DE" term="%22Decision+Making%22">Decision Making</searchLink><br /><searchLink fieldCode="DE" term="%22Cultural+Awareness%22">Cultural Awareness</searchLink><br /><searchLink fieldCode="DE" term="%22Adults%22">Adults</searchLink><br /><searchLink fieldCode="DE" term="%22Intellectual+Disability%22">Intellectual Disability</searchLink><br /><searchLink fieldCode="DE" term="%22Phenomenology%22">Phenomenology</searchLink><br /><searchLink fieldCode="DE" term="%22Self+Concept%22">Self Concept</searchLink><br /><searchLink fieldCode="DE" term="%22Delivery+Systems%22">Delivery Systems</searchLink><br /><searchLink fieldCode="DE" term="%22Social+Services%22">Social Services</searchLink><br /><searchLink fieldCode="DE" term="%22Foreign+Countries%22">Foreign Countries</searchLink><br /><searchLink fieldCode="DE" term="%22Personal+Narratives%22">Personal Narratives</searchLink><br /><searchLink fieldCode="DE" term="%22Personal+Autonomy%22">Personal Autonomy</searchLink><br /><searchLink fieldCode="DE" term="%22Family+Environment%22">Family Environment</searchLink><br /><searchLink fieldCode="DE" term="%22Safety%22">Safety</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+Patterns%22">Psychological Patterns</searchLink><br /><searchLink fieldCode="DE" term="%22Cultural+Differences%22">Cultural Differences</searchLink><br /><searchLink fieldCode="DE" term="%22Health+Personnel%22">Health Personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Caseworkers%22">Caseworkers</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22United+Kingdom+%28England%29%22">United Kingdom (England)</searchLink>
– Name: DOI
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  Data: 10.1080/20473869.2018.1469807
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  Data: 2047-3869
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Objectives: To explore the perspective of adults with intellectual disabilities from minority ethnic groups, on their relationship with social care services. Methods: Thirty-two adults took part in semi-structured interviews. Transcripts were analyzed within a Pluralist framework, adopting the structure of Template Analysis and then drawing on phenomenological, narrative, and discursive approaches. Results: Our participants were generally positive about the services which they received, which they evaluated primarily in terms of their continuing good relationship(s) with specific workers. Our respondents were sophisticated users of cultural resources and identities; the concept of 'cultural affordance' may be useful alternative to 'cultural competence'. We discuss three distinctive narratives about independence (Stability; Progress; Resistance). Each highlights the importance of maintaining connectedness to others, and the crucial role played by ownership of decision-making. Conclusions: We have developed a set of resources which service providers (and researchers) can use with people with intellectual disabilities, in order to support mutual understanding, service planning and delivery.
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