Development and Sensibility Assessment of a Health-Related Quality of Life Instrument for Adults with Severe Disabilities Who Are Non-Ambulatory
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| Title: | Development and Sensibility Assessment of a Health-Related Quality of Life Instrument for Adults with Severe Disabilities Who Are Non-Ambulatory |
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| Language: | English |
| Authors: | Zalmstra, Trees A. L. (ORCID |
| Source: | Journal of Applied Research in Intellectual Disabilities. Jul 2021 34(4):1127-1135. |
| Availability: | Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us |
| Peer Reviewed: | Y |
| Page Count: | 9 |
| Publication Date: | 2021 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Quality of Life, Adults, Severe Disabilities, Physical Disabilities, Test Construction, Test Items, Test Validity |
| DOI: | 10.1111/jar.12873 |
| ISSN: | 1360-2322 |
| Abstract: | Background: Insight in health-related quality of life (HRQoL) of adults with severe disabilities who are non-ambulatory is important, but a measure is lacking. The aim was to develop a HRQoL measure for this group. Method: The developmental process consisted of the adaptation process of a proxy HRQoL measure for children with severe disabilities who are non-ambulatory and the assessment of the sensibility of the developed instrument. A three-step process was used: focus groups, e-survey and interviews. Results: In total, 72% of the items remained unchanged. Three new items and one element to an existing item were added. In ten items, the formulation of the items was adapted to the target group. Concerning the sensibility, respondents suggested minor changes to the instruction and the output scales. Conclusions: This study has yielded a proxy HRQoL measure for adults with severe disabilities who are non-ambulatory, the CPADULT, with good sensibility. |
| Abstractor: | As Provided |
| Entry Date: | 2021 |
| Accession Number: | EJ1299779 |
| Database: | ERIC |
| Abstract: | Background: Insight in health-related quality of life (HRQoL) of adults with severe disabilities who are non-ambulatory is important, but a measure is lacking. The aim was to develop a HRQoL measure for this group. Method: The developmental process consisted of the adaptation process of a proxy HRQoL measure for children with severe disabilities who are non-ambulatory and the assessment of the sensibility of the developed instrument. A three-step process was used: focus groups, e-survey and interviews. Results: In total, 72% of the items remained unchanged. Three new items and one element to an existing item were added. In ten items, the formulation of the items was adapted to the target group. Concerning the sensibility, respondents suggested minor changes to the instruction and the output scales. Conclusions: This study has yielded a proxy HRQoL measure for adults with severe disabilities who are non-ambulatory, the CPADULT, with good sensibility. |
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| ISSN: | 1360-2322 |
| DOI: | 10.1111/jar.12873 |
