Patterns in Reporting and Participant Inclusion Related to Race and Ethnicity in Autism Intervention Literature: Data from a Large-Scale Systematic Review of Evidence-Based Practices
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| Title: | Patterns in Reporting and Participant Inclusion Related to Race and Ethnicity in Autism Intervention Literature: Data from a Large-Scale Systematic Review of Evidence-Based Practices |
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| Language: | English |
| Authors: | Steinbrenner, Jessica R. (ORCID |
| Source: | Autism: The International Journal of Research and Practice. Nov 2022 26(8):2026-2040. |
| Availability: | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com |
| Peer Reviewed: | Y |
| Page Count: | 15 |
| Publication Date: | 2022 |
| Sponsoring Agency: | Institute of Education Sciences (ED) |
| Contract Number: | R324B160038 |
| Document Type: | Journal Articles Information Analyses |
| Descriptors: | Autism Spectrum Disorders, Intervention, Ethnicity, Race, Evidence Based Practice, Data, Participation, Minority Groups, Research Problems |
| DOI: | 10.1177/13623613211072593 |
| ISSN: | 1362-3613 1461-7005 |
| Abstract: | There are marked racial and ethnic disparities in diagnosis and services for individuals on the autism spectrum, yet race and ethnicity are underreported and underexamined in autism research. The current study examines the reporting of race and ethnicity and the inclusion of participants across racial and ethnic groups in studies included in a large-scale systematic review of autism intervention research (1990-2017). Trained research assistants reviewed 1013 articles and extracted data on the reporting of race and ethnicity data and the inclusion of participants from different racial and ethnic categories from each article. Only 25% of the articles reported any data on race and ethnicity and reporting over time has slowly increased across the 28 years of the review. Descriptive statistics suggest that race and ethnicity reporting varied by study design, intervention, and outcomes. In studies with reported data, White participants had the highest rate of participation (64.8%), with a large gap between the next highest rates of participation, which were among Hispanic/Latino (9.4%), Black (7.7%), and Asian (6.4%) participants. The lack of reporting and the limited inclusion of participants across minoritized racial and ethnic groups are concerning and suggest a need to examine practices in autism research from planning to dissemination. [For the corresponding grantee submission, see ED618543.] |
| Abstractor: | As Provided |
| IES Funded: | Yes |
| Entry Date: | 2022 |
| Accession Number: | EJ1353174 |
| Database: | ERIC |
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| Abstract: | There are marked racial and ethnic disparities in diagnosis and services for individuals on the autism spectrum, yet race and ethnicity are underreported and underexamined in autism research. The current study examines the reporting of race and ethnicity and the inclusion of participants across racial and ethnic groups in studies included in a large-scale systematic review of autism intervention research (1990-2017). Trained research assistants reviewed 1013 articles and extracted data on the reporting of race and ethnicity data and the inclusion of participants from different racial and ethnic categories from each article. Only 25% of the articles reported any data on race and ethnicity and reporting over time has slowly increased across the 28 years of the review. Descriptive statistics suggest that race and ethnicity reporting varied by study design, intervention, and outcomes. In studies with reported data, White participants had the highest rate of participation (64.8%), with a large gap between the next highest rates of participation, which were among Hispanic/Latino (9.4%), Black (7.7%), and Asian (6.4%) participants. The lack of reporting and the limited inclusion of participants across minoritized racial and ethnic groups are concerning and suggest a need to examine practices in autism research from planning to dissemination. [For the corresponding grantee submission, see ED618543.] |
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| ISSN: | 1362-3613 1461-7005 |
| DOI: | 10.1177/13623613211072593 |
