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Assessing the Reliability and Validity of a Health-Related Quality of Life Instrument, CPADULT, in a Dutch Sample of Adults with Severe Disabilities Who Are Non-Ambulatory

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Title: Assessing the Reliability and Validity of a Health-Related Quality of Life Instrument, CPADULT, in a Dutch Sample of Adults with Severe Disabilities Who Are Non-Ambulatory
Language: English
Authors: Zalmstra, Trees A. L. (ORCID 0000-0001-8431-2332), Reinders-Messelink, Heleen A., Elema, Agnes, Van Gils, Willemijn, Van Der Sluis, Corry K., Van Der Putten, Annette A. J.
Source: Journal of Applied Research in Intellectual Disabilities. 2024 37(1).
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 11
Publication Date: 2024
Document Type: Journal Articles
Reports - Research
Descriptors: Test Validity, Test Reliability, Quality of Life, Adults, Severe Disabilities, Physical Disabilities, Severe Intellectual Disability, Test Construction, Physical Health, Mental Health, Well Being, Psychometrics
DOI: 10.1111/jar.13160
ISSN: 1360-2322
1468-3148
Abstract: Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the psychometric characteristics of the CPADULT. Method: Caregivers (n = 47; 77% female, 23% male) of individuals with severe disabilities who are non-ambulatory completed the questionnaire. Internal consistency, test-retest reliability and construct validity were analysed. Results: Internal consistency was adequate with Cronbach's alpha values from 0.75 to 0.95. Test-retest reliability was good, as intraclass correlation coefficient of the total score was 0.84 (domains: 0.61-0.89). Construct validity was confirmed with significant differences between subgroups of motor or intellectual abilities. Conclusion: The CPADULT has sufficient reliability and validity as a proxy measure of health-related quality of life for adults with severe disabilities who are non-ambulatory.
Abstractor: As Provided
Entry Date: 2023
Accession Number: EJ1404311
Database: ERIC
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Abstract:Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the psychometric characteristics of the CPADULT. Method: Caregivers (n = 47; 77% female, 23% male) of individuals with severe disabilities who are non-ambulatory completed the questionnaire. Internal consistency, test-retest reliability and construct validity were analysed. Results: Internal consistency was adequate with Cronbach's alpha values from 0.75 to 0.95. Test-retest reliability was good, as intraclass correlation coefficient of the total score was 0.84 (domains: 0.61-0.89). Construct validity was confirmed with significant differences between subgroups of motor or intellectual abilities. Conclusion: The CPADULT has sufficient reliability and validity as a proxy measure of health-related quality of life for adults with severe disabilities who are non-ambulatory.
ISSN:1360-2322
1468-3148
DOI:10.1111/jar.13160