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'My Autism Is Linked with Everything': At the Crossroads of Autism and Diabetes

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Bibliographic Details
Title: 'My Autism Is Linked with Everything': At the Crossroads of Autism and Diabetes
Language: English
Authors: Ritwika Vinayagam (ORCID 0000-0002-8730-6744), Christopher Tanner, David Harley, Shamshad Karatela, Katie Brooker
Source: Journal of Autism and Developmental Disorders. 2024 54(8):3122-3132.
Availability: Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/
Peer Reviewed: Y
Page Count: 11
Publication Date: 2024
Document Type: Journal Articles
Reports - Research
Descriptors: Autism Spectrum Disorders, Diabetes, Adults, Health Conditions, Attitudes, Experience, Self Management, Health Behavior
DOI: 10.1007/s10803-023-06033-3
ISSN: 0162-3257
1573-3432
Abstract: Autistic adults experience stark health disparities and difficulties accessing health care. Their realities of managing complex health conditions are unknown. Our research explored the experience of Autistic adults self-managing diabetes. Interviews with Autistic adults with diabetes and their support people were thematically analysed to identify three key themes. The Autistic experience influenced diabetes self-management, including autism-unique challenges and strengths. Participants prioritised avoiding Autistic burnout over diabetes self-management; mitigating the psychosocial pressures of neurotypical systems took precedence. Health professionals often separated autism and diabetes subsequently overlooking key factors impacting diabetes self-management. To better meet the needs of Autistic adults, diabetes care and health management more broadly should be considered within the context of autism, including supports for self-management during Autistic burnout.
Abstractor: As Provided
Entry Date: 2024
Accession Number: EJ1434196
Database: ERIC
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Abstract:Autistic adults experience stark health disparities and difficulties accessing health care. Their realities of managing complex health conditions are unknown. Our research explored the experience of Autistic adults self-managing diabetes. Interviews with Autistic adults with diabetes and their support people were thematically analysed to identify three key themes. The Autistic experience influenced diabetes self-management, including autism-unique challenges and strengths. Participants prioritised avoiding Autistic burnout over diabetes self-management; mitigating the psychosocial pressures of neurotypical systems took precedence. Health professionals often separated autism and diabetes subsequently overlooking key factors impacting diabetes self-management. To better meet the needs of Autistic adults, diabetes care and health management more broadly should be considered within the context of autism, including supports for self-management during Autistic burnout.
ISSN:0162-3257
1573-3432
DOI:10.1007/s10803-023-06033-3