Stress, Anxiety and Coping in Adults with Down Syndrome: An Exploratory Co-Research Study

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Bibliographic Details
Title: Stress, Anxiety and Coping in Adults with Down Syndrome: An Exploratory Co-Research Study
Language: English
Authors: Ashley Scott, Ryan Gould, Liam Quidore, Keryden Koeut-Futch, Emily Bock, Prisha Sujin Kumar, Staci Christensen, Augusta Edouard, Benjamin Golden, Eden Rapp, Kaethe Sigelko, Alexis Sokoloff, Caley Versfelt, Eric Rubenstein (ORCID 0000-0002-9146-4497)
Source: Journal of Applied Research in Intellectual Disabilities. 2025 38(1).
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 9
Publication Date: 2025
Sponsoring Agency: National Institute on Aging (NIA) (DHHS/NIH)
Contract Number: R01AG073179
Document Type: Journal Articles
Reports - Research
Descriptors: Down Syndrome, Adults, Stress Variables, Anxiety, Stress Management, Coping, Employment Level, Mental Health
DOI: 10.1111/jar.13311
ISSN: 1360-2322
1468-3148
Abstract: Background: At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome. Methods: Our group of researchers and adults with Down syndrome conducted an online survey on mental health for adults with Down syndrome. We analysed quantitative data and thematically grouped coping mechanisms. Results: Sixty adults with Down syndrome completed the survey, mean age was 30 years, and 55% of respondents had some employment. Approximately 80% of respondents reported experiencing stress and 75% reported experiencing anxiety. Employed respondents were more likely to use social coping mechanisms. Conclusion: Soliciting responses from adults with Down syndrome about their mental health can provide valuable insights. Mental health is a concern for people with Down syndrome that should be addressed.
Abstractor: As Provided
Entry Date: 2025
Accession Number: EJ1461056
Database: ERIC
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Description
Abstract:Background: At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome. Methods: Our group of researchers and adults with Down syndrome conducted an online survey on mental health for adults with Down syndrome. We analysed quantitative data and thematically grouped coping mechanisms. Results: Sixty adults with Down syndrome completed the survey, mean age was 30 years, and 55% of respondents had some employment. Approximately 80% of respondents reported experiencing stress and 75% reported experiencing anxiety. Employed respondents were more likely to use social coping mechanisms. Conclusion: Soliciting responses from adults with Down syndrome about their mental health can provide valuable insights. Mental health is a concern for people with Down syndrome that should be addressed.
ISSN:1360-2322
1468-3148
DOI:10.1111/jar.13311