Stress, Anxiety and Coping in Adults with Down Syndrome: An Exploratory Co-Research Study
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| Title: | Stress, Anxiety and Coping in Adults with Down Syndrome: An Exploratory Co-Research Study |
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| Language: | English |
| Authors: | Ashley Scott, Ryan Gould, Liam Quidore, Keryden Koeut-Futch, Emily Bock, Prisha Sujin Kumar, Staci Christensen, Augusta Edouard, Benjamin Golden, Eden Rapp, Kaethe Sigelko, Alexis Sokoloff, Caley Versfelt, Eric Rubenstein (ORCID |
| Source: | Journal of Applied Research in Intellectual Disabilities. 2025 38(1). |
| Availability: | Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us |
| Peer Reviewed: | Y |
| Page Count: | 9 |
| Publication Date: | 2025 |
| Sponsoring Agency: | National Institute on Aging (NIA) (DHHS/NIH) |
| Contract Number: | R01AG073179 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Down Syndrome, Adults, Stress Variables, Anxiety, Stress Management, Coping, Employment Level, Mental Health |
| DOI: | 10.1111/jar.13311 |
| ISSN: | 1360-2322 1468-3148 |
| Abstract: | Background: At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome. Methods: Our group of researchers and adults with Down syndrome conducted an online survey on mental health for adults with Down syndrome. We analysed quantitative data and thematically grouped coping mechanisms. Results: Sixty adults with Down syndrome completed the survey, mean age was 30 years, and 55% of respondents had some employment. Approximately 80% of respondents reported experiencing stress and 75% reported experiencing anxiety. Employed respondents were more likely to use social coping mechanisms. Conclusion: Soliciting responses from adults with Down syndrome about their mental health can provide valuable insights. Mental health is a concern for people with Down syndrome that should be addressed. |
| Abstractor: | As Provided |
| Entry Date: | 2025 |
| Accession Number: | EJ1461056 |
| Database: | ERIC |
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| Abstract: | Background: At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome. Methods: Our group of researchers and adults with Down syndrome conducted an online survey on mental health for adults with Down syndrome. We analysed quantitative data and thematically grouped coping mechanisms. Results: Sixty adults with Down syndrome completed the survey, mean age was 30 years, and 55% of respondents had some employment. Approximately 80% of respondents reported experiencing stress and 75% reported experiencing anxiety. Employed respondents were more likely to use social coping mechanisms. Conclusion: Soliciting responses from adults with Down syndrome about their mental health can provide valuable insights. Mental health is a concern for people with Down syndrome that should be addressed. |
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| ISSN: | 1360-2322 1468-3148 |
| DOI: | 10.1111/jar.13311 |