Quality of Life Outcomes of Autistic Adults, Including Those with Multiple Disabilities, and the Benefits of Person-Centered Supports
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| Title: | Quality of Life Outcomes of Autistic Adults, Including Those with Multiple Disabilities, and the Benefits of Person-Centered Supports |
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| Language: | English |
| Authors: | Carli Friedman (ORCID |
| Source: | Journal of Developmental and Physical Disabilities. 2025 37(2):239-258. |
| Availability: | Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/ |
| Peer Reviewed: | Y |
| Page Count: | 20 |
| Publication Date: | 2025 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Adults, Autism Spectrum Disorders, Quality of Life, Evidence Based Practice, Multi Tiered Systems of Support, Comorbidity, Individualized Programs, Individual Needs |
| DOI: | 10.1007/s10882-024-10002-8 |
| ISSN: | 1056-263X 1573-3580 |
| Abstract: | Examining the quality of life outcomes and supports of autistic people, particularly without proxies, is important to inform research and service delivery -- not only for it to be more evidenced-based, but also to ensure services and supports are successfully supporting autistic people in ways that are important to them. The aim of this exploratory study was to examine the quality of life personal outcomes of autistic people; our secondary aim was to examine the presence of person-centered organizational supports to facilitate autistic people's outcomes. We analyzed secondary Personal Outcome Measures interview data from 860 autistic adults (January 1, 2018 and December 31, 2023), many of which also had additional intellectual/developmental disabilities. Autistic people had 50.4% of outcomes present; they were most likely to be safe and have the best possible health, and least likely to choose where and with whom to live, and choose their services. Autistic people had 52.1% of individualized supports in place. While there were differences in autistic people's outcomes and supports based on their sociodemographics, the presence of supports played a larger role in quality of life. While much work remains, our findings indicate that with thoughtful, person-centered services and supports, autistic people's outcomes improve tremendously. |
| Abstractor: | As Provided |
| Entry Date: | 2025 |
| Accession Number: | EJ1462992 |
| Database: | ERIC |
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| Abstract: | Examining the quality of life outcomes and supports of autistic people, particularly without proxies, is important to inform research and service delivery -- not only for it to be more evidenced-based, but also to ensure services and supports are successfully supporting autistic people in ways that are important to them. The aim of this exploratory study was to examine the quality of life personal outcomes of autistic people; our secondary aim was to examine the presence of person-centered organizational supports to facilitate autistic people's outcomes. We analyzed secondary Personal Outcome Measures interview data from 860 autistic adults (January 1, 2018 and December 31, 2023), many of which also had additional intellectual/developmental disabilities. Autistic people had 50.4% of outcomes present; they were most likely to be safe and have the best possible health, and least likely to choose where and with whom to live, and choose their services. Autistic people had 52.1% of individualized supports in place. While there were differences in autistic people's outcomes and supports based on their sociodemographics, the presence of supports played a larger role in quality of life. While much work remains, our findings indicate that with thoughtful, person-centered services and supports, autistic people's outcomes improve tremendously. |
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| ISSN: | 1056-263X 1573-3580 |
| DOI: | 10.1007/s10882-024-10002-8 |
