Understanding the Experiences of Receiving and Providing Maternity Care for Autistic Adults: A Multi-Perspectival Interpretative Phenomenological Analysis Study

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Bibliographic Details
Title: Understanding the Experiences of Receiving and Providing Maternity Care for Autistic Adults: A Multi-Perspectival Interpretative Phenomenological Analysis Study
Language: English
Authors: Laura Moore, Sarah Foley (ORCID 0000-0003-3450-148X), Fionnuala Larkin
Source: Autism: The International Journal of Research and Practice. 2025 29(2):435-446.
Availability: SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com
Peer Reviewed: Y
Page Count: 12
Publication Date: 2025
Document Type: Journal Articles
Reports - Research
Descriptors: Autism Spectrum Disorders, Mothers, Birth, Barriers, Caring, Allied Health Personnel, Obstetrics, Hospitals, Interpersonal Communication, Experience, Needs, Symptoms (Individual Disorders), Clinics, Perceptual Impairments, Interpersonal Relationship, Foreign Countries
Geographic Terms: United Kingdom, Ireland
DOI: 10.1177/13623613241274518
ISSN: 1362-3613
1461-7005
Abstract: Available research suggests autistic mothers experience greater dissatisfaction with maternity care compared to non-autistic mothers. Limited research exists exploring autistic mothers' experiences of maternity care, and no research to date has considered maternity care professionals' experiences of delivering care to autistic mothers. This qualitative study aims to explore the experiences of receiving and providing maternity care for autistic mothers. Data were collected using semi-structured interviews with four autistic mothers and four midwives. Data were analysed using Multi-perspectival Interpretative Phenomenological Analysis. Three overarching themes emerged: 'challenges faced within maternity care, 'the importance of the caring relationship', and 'the challenge of navigating competing demands and priorities'. Findings highlight the unique challenges experienced by autistic mothers during labour and birth, the need for increased autism awareness in midwifery, and further suggest universal changes to the delivery of maternity care which would benefit autistic women.
Abstractor: As Provided
Entry Date: 2025
Accession Number: EJ1465371
Database: ERIC
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Abstract:Available research suggests autistic mothers experience greater dissatisfaction with maternity care compared to non-autistic mothers. Limited research exists exploring autistic mothers' experiences of maternity care, and no research to date has considered maternity care professionals' experiences of delivering care to autistic mothers. This qualitative study aims to explore the experiences of receiving and providing maternity care for autistic mothers. Data were collected using semi-structured interviews with four autistic mothers and four midwives. Data were analysed using Multi-perspectival Interpretative Phenomenological Analysis. Three overarching themes emerged: 'challenges faced within maternity care, 'the importance of the caring relationship', and 'the challenge of navigating competing demands and priorities'. Findings highlight the unique challenges experienced by autistic mothers during labour and birth, the need for increased autism awareness in midwifery, and further suggest universal changes to the delivery of maternity care which would benefit autistic women.
ISSN:1362-3613
1461-7005
DOI:10.1177/13623613241274518