'Building Our Own House' as an Insider-Only Community-Partnered Participatory Research Council: Co-Creating a Safe Space for Autistic Knowledge Production
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| Title: | 'Building Our Own House' as an Insider-Only Community-Partnered Participatory Research Council: Co-Creating a Safe Space for Autistic Knowledge Production |
|---|---|
| Language: | English |
| Authors: | Gemma L. Williams (ORCID |
| Source: | Autism: The International Journal of Research and Practice. 2025 29(9):2205-2215. |
| Availability: | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com |
| Peer Reviewed: | Y |
| Page Count: | 11 |
| Publication Date: | 2025 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Autism Spectrum Disorders, Community Organizations, Community Study, Community Leaders, Researchers, Participatory Research, Safety, Cooperation |
| DOI: | 10.1177/13623613241253014 |
| ISSN: | 1362-3613 1461-7005 |
| Abstract: | This article describes and reflects on the first six meetings of a newly established Autistic community council, founded to steer a participatory, longitudinal qualitative study investigating the reproductive health of Autistic people with wombs. The two key aims of these initial six meetings -- involving four Autistic community leader members and three Autistic researchers -- was to (1) guide the start of the project and the development of accessible recruitment materials for the future eight lay members and (2) establish a safe space and a model of accessible communication. We draw on extracts from transcripts made during meetings, member 'field' notes and a reflexive co-writing practice to identify the ways in which a sense of safety was built during these first community council meetings. We explore what it means to be an "insider"-only Community Partnered Participatory Research Council and reflect on the praxis we developed to facilitate Autistic knowledge production. |
| Abstractor: | As Provided |
| Entry Date: | 2025 |
| Accession Number: | EJ1479948 |
| Database: | ERIC |
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| Abstract: | This article describes and reflects on the first six meetings of a newly established Autistic community council, founded to steer a participatory, longitudinal qualitative study investigating the reproductive health of Autistic people with wombs. The two key aims of these initial six meetings -- involving four Autistic community leader members and three Autistic researchers -- was to (1) guide the start of the project and the development of accessible recruitment materials for the future eight lay members and (2) establish a safe space and a model of accessible communication. We draw on extracts from transcripts made during meetings, member 'field' notes and a reflexive co-writing practice to identify the ways in which a sense of safety was built during these first community council meetings. We explore what it means to be an "insider"-only Community Partnered Participatory Research Council and reflect on the praxis we developed to facilitate Autistic knowledge production. |
|---|---|
| ISSN: | 1362-3613 1461-7005 |
| DOI: | 10.1177/13623613241253014 |
