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Relationship between Affiliate Stigma, Stress and Perceived Quality of Life among Parents of Children with Down Syndrome

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Bibliographic Details
Title: Relationship between Affiliate Stigma, Stress and Perceived Quality of Life among Parents of Children with Down Syndrome
Language: English
Authors: Shin Ying Chu (ORCID 0000-0002-3558-0477), Jaehoon Lee (ORCID 0000-0002-5040-843X), Dini Sofea Binti Zamsyari, Chun Hong Gan, Pui Juan Woi, Agnes Shu Sze Chong (ORCID 0000-0002-6410-4939), Maria Garraffa (ORCID 0000-0003-1767-424X), Ling-Yi Lin (ORCID 0000-0002-1438-0820)
Source: Journal of Applied Research in Intellectual Disabilities. 2025 38(4).
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 11
Publication Date: 2025
Document Type: Journal Articles
Reports - Research
Descriptors: Attitudes toward Disabilities, Social Bias, Stress Variables, Quality of Life, Parents, Children, Down Syndrome, Rehabilitation Programs, Family Needs
DOI: 10.1111/jar.70099
ISSN: 1360-2322
1468-3148
Abstract: Background: To examine the relationship between affiliate stigma, stress and perceived quality of life amongst parents of children with Down syndrome (DS). Method: Seventy-eight parents of children with DS completed the Affiliate Stigma Scale (ASS), Caregiver Burden Inventory (CBI) and Care-related Quality of Life (CarerQol) scales. Results: Pearson correlations revealed that parents did not feel stigmatised for having a child with DS (M = 30.51, SD = 10.47) and reported a low caregiver burden (CBI Total M = 19.73, SD = 12.72). The relatively lower caregiving burden, challenges and future barriers in the DS group explained its lesser stigma, higher quality of life and greater happiness compared to the ASD and CP groups. Conclusion: Healthcare professionals who provide rehabilitation services to children with DS need to be more aware of the needs of families and caregivers and educated about how to best support them.
Abstractor: As Provided
Entry Date: 2025
Accession Number: EJ1481502
Database: ERIC
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Abstract:Background: To examine the relationship between affiliate stigma, stress and perceived quality of life amongst parents of children with Down syndrome (DS). Method: Seventy-eight parents of children with DS completed the Affiliate Stigma Scale (ASS), Caregiver Burden Inventory (CBI) and Care-related Quality of Life (CarerQol) scales. Results: Pearson correlations revealed that parents did not feel stigmatised for having a child with DS (M = 30.51, SD = 10.47) and reported a low caregiver burden (CBI Total M = 19.73, SD = 12.72). The relatively lower caregiving burden, challenges and future barriers in the DS group explained its lesser stigma, higher quality of life and greater happiness compared to the ASD and CP groups. Conclusion: Healthcare professionals who provide rehabilitation services to children with DS need to be more aware of the needs of families and caregivers and educated about how to best support them.
ISSN:1360-2322
1468-3148
DOI:10.1111/jar.70099