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The Impact of Traumatic and Stressful Life Events on the Relatives of Trauma-Exposed Adults with Severe or Moderate Intellectual Disabilities: 'Each Time a Piece of Your Strength Breaks Off'

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Title: The Impact of Traumatic and Stressful Life Events on the Relatives of Trauma-Exposed Adults with Severe or Moderate Intellectual Disabilities: 'Each Time a Piece of Your Strength Breaks Off'
Language: English
Authors: Annemieke Hoogstad (ORCID 0000-0002-8901-1173), Nienke Peters-Scheffer (ORCID 0000-0003-4832-0241), Liesbeth Mevissen (ORCID 0000-0002-5516-4040), Robert Didden (ORCID 0000-0001-5009-4269)
Source: Journal of Intellectual & Developmental Disability. 2026 51(1):63-73.
Availability: Taylor & Francis. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Peer Reviewed: Y
Page Count: 11
Publication Date: 2026
Document Type: Journal Articles
Reports - Research
Descriptors: Adults, Trauma, Severe Intellectual Disability, Moderate Intellectual Disability, Experience, Symptoms (Individual Disorders), Incidence, Psychological Patterns, Coping, At Risk Persons, Family Role, Stress Variables
DOI: 10.3109/13668250.2025.2525661
ISSN: 1366-8250
1469-9532
Abstract: Background: Adults with severe or moderate intellectual disabilities frequently experience traumatic events, placing them at higher risk for trauma-related disorders. Although these events also affect their relatives, their experiences have not been studied. Method: Thematic analysis was conducted on interviews with eight first-degree relatives of adults with severe or moderate intellectual disabilities who had experienced traumatic events, as identified through a trauma interview. Results: Four themes emerged: (1) the impact varied, with some relatives developing trauma-related symptoms; (2) characteristics of events in terms of severity and frequency, accompanied by feelings of helplessness, guilt, and inadequacy; (3) coping strategies, including social support, persevering and avoidance; and (4) the link between impact and long-term care for the client, potentially increasing relatives' susceptibility to complaints. Conclusion: Professionals must be aware of the effects of trauma on relatives of individuals with severe or moderate intellectual disabilities. Further research needs to explore differences among relatives.
Abstractor: As Provided
Entry Date: 2026
Accession Number: EJ1505395
Database: ERIC
FullText Text:
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  Data: The Impact of Traumatic and Stressful Life Events on the Relatives of Trauma-Exposed Adults with Severe or Moderate Intellectual Disabilities: 'Each Time a Piece of Your Strength Breaks Off'
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  Data: <searchLink fieldCode="AR" term="%22Annemieke+Hoogstad%22">Annemieke Hoogstad</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-8901-1173">0000-0002-8901-1173</externalLink>)<br /><searchLink fieldCode="AR" term="%22Nienke+Peters-Scheffer%22">Nienke Peters-Scheffer</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0003-4832-0241">0000-0003-4832-0241</externalLink>)<br /><searchLink fieldCode="AR" term="%22Liesbeth+Mevissen%22">Liesbeth Mevissen</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-5516-4040">0000-0002-5516-4040</externalLink>)<br /><searchLink fieldCode="AR" term="%22Robert+Didden%22">Robert Didden</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0001-5009-4269">0000-0001-5009-4269</externalLink>)
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  Data: <searchLink fieldCode="SO" term="%22Journal+of+Intellectual+%26+Developmental+Disability%22"><i>Journal of Intellectual & Developmental Disability</i></searchLink>. 2026 51(1):63-73.
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  Data: Taylor & Francis. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
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  Data: <searchLink fieldCode="DE" term="%22Adults%22">Adults</searchLink><br /><searchLink fieldCode="DE" term="%22Trauma%22">Trauma</searchLink><br /><searchLink fieldCode="DE" term="%22Severe+Intellectual+Disability%22">Severe Intellectual Disability</searchLink><br /><searchLink fieldCode="DE" term="%22Moderate+Intellectual+Disability%22">Moderate Intellectual Disability</searchLink><br /><searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br /><searchLink fieldCode="DE" term="%22Symptoms+%28Individual+Disorders%29%22">Symptoms (Individual Disorders)</searchLink><br /><searchLink fieldCode="DE" term="%22Incidence%22">Incidence</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+Patterns%22">Psychological Patterns</searchLink><br /><searchLink fieldCode="DE" term="%22Coping%22">Coping</searchLink><br /><searchLink fieldCode="DE" term="%22At+Risk+Persons%22">At Risk Persons</searchLink><br /><searchLink fieldCode="DE" term="%22Family+Role%22">Family Role</searchLink><br /><searchLink fieldCode="DE" term="%22Stress+Variables%22">Stress Variables</searchLink>
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  Data: 10.3109/13668250.2025.2525661
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  Data: 1366-8250<br />1469-9532
– Name: Abstract
  Label: Abstract
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  Data: Background: Adults with severe or moderate intellectual disabilities frequently experience traumatic events, placing them at higher risk for trauma-related disorders. Although these events also affect their relatives, their experiences have not been studied. Method: Thematic analysis was conducted on interviews with eight first-degree relatives of adults with severe or moderate intellectual disabilities who had experienced traumatic events, as identified through a trauma interview. Results: Four themes emerged: (1) the impact varied, with some relatives developing trauma-related symptoms; (2) characteristics of events in terms of severity and frequency, accompanied by feelings of helplessness, guilt, and inadequacy; (3) coping strategies, including social support, persevering and avoidance; and (4) the link between impact and long-term care for the client, potentially increasing relatives' susceptibility to complaints. Conclusion: Professionals must be aware of the effects of trauma on relatives of individuals with severe or moderate intellectual disabilities. Further research needs to explore differences among relatives.
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