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Modeling the Social Determinants of Caregiver Burden among Families of Children with Developmental Disabilities

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Title: Modeling the Social Determinants of Caregiver Burden among Families of Children with Developmental Disabilities
Language: English
Authors: McManus, Beth M., Carle, Adam, Acevedo-Garcia, Dolores
Source: American Journal on Intellectual and Developmental Disabilities. May 2011 116(3):246-260.
Availability: American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://aaidd.allenpress.com
Peer Reviewed: Y
Physical Description: PDF
Page Count: 15
Publication Date: 2011
Document Type: Journal Articles
Reports - Research
Descriptors: Health Needs, Structural Equation Models, Caregivers, Developmental Disabilities, Parents, Children, Adolescents, Disabilities, Predictor Variables
DOI: 10.1352/1944-7558-116.3.246
ISSN: 1944-7515
Abstract: This study described predictors of caregiver burden among parents of children with developmental disabilities. The sample, obtained from the 2005-2006 National Survey of Children With Special Health Care Needs, included 12,225 children, aged 5 to 17 years, with a developmental disability. Structural equation modeling assessed the relationships between the factors of Caregiver Burden, Ease of Accessing and Navigating the Health Care System, and Unmet Health Care Needs. Caregiver burden was inversely associated with ease of accessing and navigating the health care system ([beta] = -0.094, SE ([beta]) = 0.045) and positively associated with unmet health care needs ([beta] = 0.428, SE ([beta]) = 0.036). Parents of poor, minority, and uninsured children experienced significantly greater caregiver burden. Bolstering services, particularly for vulnerable families, may ameliorate caregiver burden.
Abstractor: As Provided
Entry Date: 2011
Accession Number: EJ927006
Database: ERIC
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  Data: Modeling the Social Determinants of Caregiver Burden among Families of Children with Developmental Disabilities
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  Data: <searchLink fieldCode="AR" term="%22McManus%2C+Beth+M%2E%22">McManus, Beth M.</searchLink><br /><searchLink fieldCode="AR" term="%22Carle%2C+Adam%22">Carle, Adam</searchLink><br /><searchLink fieldCode="AR" term="%22Acevedo-Garcia%2C+Dolores%22">Acevedo-Garcia, Dolores</searchLink>
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  Data: <searchLink fieldCode="SO" term="%22American+Journal+on+Intellectual+and+Developmental+Disabilities%22"><i>American Journal on Intellectual and Developmental Disabilities</i></searchLink>. May 2011 116(3):246-260.
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  Data: American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://aaidd.allenpress.com
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  Data: 10.1352/1944-7558-116.3.246
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  Data: This study described predictors of caregiver burden among parents of children with developmental disabilities. The sample, obtained from the 2005-2006 National Survey of Children With Special Health Care Needs, included 12,225 children, aged 5 to 17 years, with a developmental disability. Structural equation modeling assessed the relationships between the factors of Caregiver Burden, Ease of Accessing and Navigating the Health Care System, and Unmet Health Care Needs. Caregiver burden was inversely associated with ease of accessing and navigating the health care system ([beta] = -0.094, SE ([beta]) = 0.045) and positively associated with unmet health care needs ([beta] = 0.428, SE ([beta]) = 0.036). Parents of poor, minority, and uninsured children experienced significantly greater caregiver burden. Bolstering services, particularly for vulnerable families, may ameliorate caregiver burden.
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      – SubjectFull: Structural Equation Models
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      – SubjectFull: Caregivers
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      – SubjectFull: Developmental Disabilities
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      – SubjectFull: Parents
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      – SubjectFull: Children
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      – SubjectFull: Adolescents
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      – SubjectFull: Disabilities
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      – SubjectFull: Predictor Variables
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      – TitleFull: Modeling the Social Determinants of Caregiver Burden among Families of Children with Developmental Disabilities
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