Transición de pacientes con enfermedades metabólicas óseas de inicio pediátrico: variabilidad en el seguimiento y propuesta de densitometría ósea de transición.

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Title:	Transición de pacientes con enfermedades metabólicas óseas de inicio pediátrico: variabilidad en el seguimiento y propuesta de densitometría ósea de transición.
Alternate Title:	Transition of patients with pediatric-onset metabolic bone diseases: variability in follow-up and proposal for transition bone densitometry.
Authors:	Magallares-López, Berta¹ berpauma@hotmail.com, Mir-Perelló, Concepción², Bou-Torrent, Rosa³, Galindo-Zavala, Rocío⁴, López-Corbeto, Mireia⁵, Isabel González-Fernández, M. ª⁶, Román-Pascual, Almudena⁷, Sevilla-Pérez, Belén⁸, Palmou-Fontana, Natalia⁹, Alcañiz-Rodríguez, Paula¹⁰, Medrano-San Ildefonso, Marta¹¹, Nieto-González, Juan Carlos¹², Berholt, Laura⁹, Martínez-Regueira, Soledad¹³, Graña-Gil, Jenaro¹³
Source:	Journal of Osteoporosis & Mineral Metabolism / Revista de Osteoporosis y Metabolismo Mineral (Spanish edition). Apr-Jun2026, Vol. 18 Issue 2, p65-71. 7p.
Subjects:	Bone densitometry, Transitional care, Continuum of care, Patient handoff, Osteoporosis, Metabolic bone disorders, Endocrinology, Rheumatology
Abstract (English):	Objectives: to evaluate variability in the transition of patients with metabolic bone diseases (primary pediatric osteoporosis, secondary osteoporosis, and low bone mass) from pediatric units to adult specialties, and to analyze the use of bone densitometry and the existence of structured protocols. Material and methods: a 17-question survey was designed and addressed to professionals from the different specialties involved in the follow-up of patients with metabolic bone diseases. It was distributed through the following scientific societies: Sociedad Española de Reumatología Pediátrica, Sociedad Española de Reumatología, Sociedad Española de Endocrinología Pediátrica, Sociedad Española de Endocrinología y Nutrición, Sociedad Española de Investigación Ósea y del Metabolismo Mineral, and Asociación Española de Pediatría. A total of 147 responses were collected and a descriptive analysis was performed. Results: during pediatric age, follow-up was mainly conducted by Rheumatology (51 %) and Endocrinology (44 %). After transfer, Adult Rheumatology predominated (primary osteoporosis 47.6 %, secondary osteoporosis 44.5 %). Regarding loss to follow-up, a total of 45 % of respondents were unaware whether patients remained under follow-up, 17 % estimated a loss of 20-40 %, and 15 % estimated a loss of 0-20 %. Only 10 % had a formalized protocol. A total of 22 % performed bone densitometry during transition, and 45 % used the same device throughout all stages. During pediatric age, explored sites included lumbar spine (55 %), hip (27.4 %), and whole body (15 %). Hip assessment decreased to 19 % during transition, despite its potential usefulness as a reference for adulthood. Conclusions: there is substantial heterogeneity in follow-up and use of bone densitometry during transition. We propose the concept of "transition bone densitometry" as an applicable strategy to improve continuity of care in these patients. [ABSTRACT FROM AUTHOR]
Abstract (Spanish):	Objetivos: evaluar la variabilidad en la transición de pacientes con enfermedades metabólicas óseas (osteoporosis infantil primaria, secundaria y baja masa ósea) desde unidades pediátricas a especialidades de adultos, y analizar el uso de densitometría ósea y la existencia de protocolos estructurados. Material y métodos: se diseñó una encuesta de 17 preguntas dirigida a profesionales de las distintas especialidades implicadas en el seguimiento de los pacientes con enfermedades metabólicas óseas. Se distribuyó a través de las sociedades científicas: Sociedad Española de Reumatología Pediátrica, Sociedad Española de Reumatología, Sociedad Española de Endocrinología Pediátrica, Sociedad Española de Endocrinología y Nutrición, Sociedad Española de Investigación Ósea y del Metabolismo Mineral, y Asociación Española de Pediatría. Se recogieron 147 respuestas y se realizó un análisis descriptivo. Resultados: en la edad pediátrica, el seguimiento recaía principalmente en Reumatología (51 %) y Endocrinología (44 %). Tras la transferencia, predominaba Reumatología de Adultos (osteoporosis primaria 47,6 %, secundaria 44,5 %). En cuanto a las pérdidas de seguimiento, el 45 % de los encuestados desconocía si los pacientes seguían en control, el 17 % estimó una pérdida del 20-40 % y el 15 % del 0-20 %. Solo el 10 % disponía de protocolo formalizado. El 22 % realizaba densitometría ósea durante la transición y el 45 % utilizaba el mismo aparato en todas las etapas. En la edad pediátrica, las localizaciones exploradas incluían columna lumbar (55 %), cadera (27,4 %) y cuerpo entero (15 %). El uso de la cadera descendía al 19 % durante la transición, a pesar de su posible utilidad como referencia para la edad adulta. Conclusiones: existe una importante heterogeneidad en el seguimiento y uso de densitometría ósea durante la transición. Proponemos el concepto de "densitometría ósea de transición" como estrategia aplicable para mejorar la continuidad asistencial en estos pacientes. [ABSTRACT FROM AUTHOR]
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Database:	MedicLatina

Description
Abstract:	Objectives: to evaluate variability in the transition of patients with metabolic bone diseases (primary pediatric osteoporosis, secondary osteoporosis, and low bone mass) from pediatric units to adult specialties, and to analyze the use of bone densitometry and the existence of structured protocols. Material and methods: a 17-question survey was designed and addressed to professionals from the different specialties involved in the follow-up of patients with metabolic bone diseases. It was distributed through the following scientific societies: Sociedad Española de Reumatología Pediátrica, Sociedad Española de Reumatología, Sociedad Española de Endocrinología Pediátrica, Sociedad Española de Endocrinología y Nutrición, Sociedad Española de Investigación Ósea y del Metabolismo Mineral, and Asociación Española de Pediatría. A total of 147 responses were collected and a descriptive analysis was performed. Results: during pediatric age, follow-up was mainly conducted by Rheumatology (51 %) and Endocrinology (44 %). After transfer, Adult Rheumatology predominated (primary osteoporosis 47.6 %, secondary osteoporosis 44.5 %). Regarding loss to follow-up, a total of 45 % of respondents were unaware whether patients remained under follow-up, 17 % estimated a loss of 20-40 %, and 15 % estimated a loss of 0-20 %. Only 10 % had a formalized protocol. A total of 22 % performed bone densitometry during transition, and 45 % used the same device throughout all stages. During pediatric age, explored sites included lumbar spine (55 %), hip (27.4 %), and whole body (15 %). Hip assessment decreased to 19 % during transition, despite its potential usefulness as a reference for adulthood. Conclusions: there is substantial heterogeneity in follow-up and use of bone densitometry during transition. We propose the concept of "transition bone densitometry" as an applicable strategy to improve continuity of care in these patients. [ABSTRACT FROM AUTHOR]
ISSN:	1889836X
DOI:	10.20960/RevOsteoporosMetabMiner.00117