Participación de los pacientes y sus padres en las decisiones sanitarias en neurología pediátrica.

Saved in:

Bibliographic Details
Title:	Participación de los pacientes y sus padres en las decisiones sanitarias en neurología pediátrica.
Alternate Title:	Decision making of patients and their parents in healthcare decisions in pediatric neurology.
Authors:	Vega, Sebastián^1,2 sebastian.vega@uv.cl, Sandoval, Millaray³, Parada, Lukas³, Garrido, Constanza^1,4
Source:	Andes Pediatrica. may/jun2026, Vol. 97 Issue 3, p431-439. 9p.
Subjects:	Medical decision making, Patient participation, Parenting, Group decision making, Pediatric neurology, Gender differences (Sociology), Autonomy (Psychology)
Abstract (English):	Changes in the current clinical relationship involve incorporating children and adolescents as subjects of rights in healthcare decisions, within their context and based on their values, through a relational autonomy approach. The shared decision-making (SDM) process has demonstrated positive effects in pediatrics and is a current social demand. Objective: To evaluate the process of patient and parent participation in healthcare decisions in neuropediatric outpatient consultations. Patients and Method: Descriptive, quantitative cross-sectional study in two urban hospitals in Valparaíso. The study population consisted of pediatric patients aged 7-18 years and their parents. The CollaboRATEpediatric instrument was used to assess the level of satisfaction with the SDM process. Demographic information was recorded and analyzed according to recommendations. Results: Sixty-two parent/child pairs participated. A Top Score was achieved in 56% of cases (the percentage in which the maximum score was obtained in the three surveys), with no significant difference between centers. The figures observed were lower than internationally reported levels. The lack of correlation between parents’ perceptions of their participation in decisions and those expressed by the children and adolescents themselves was noteworthy. All female children and adolescents felt well-involved in decision-making, although this difference was not statistically significant. Conclusions: In this study, the score obtained was lower than international reports. High rates of paternalism have been described in Latin America. The difference between parents’ and children’s perceptions of parental involvement suggests the need to improve care conditions and communication strategies. The non-significant trend among female children and adolescents is consistent with international reports. The role of gender in adopting a paternalistic attitude among professionals is described. [ABSTRACT FROM AUTHOR]
Abstract (Spanish):	Los cambios en la relación clínica actual implican incorporar a niños, niñas y adolescentes (NNA) como sujetos de derechos en las decisiones sanitarias, en su contexto y desde sus valores, mediante enfoque de autonomía relacional. El proceso de toma de decisiones compartidas (TDC) ha demostrado efectos positivos en pediatría y es una demanda actual de la sociedad. Objetivo: Evaluar el proceso de participación de pacientes y sus padres en decisiones sanitarias en consulta ambulatoria neuropediátrica. Pacientes y Método: Estudio cuantitativo descriptivo transversal en 2 hospitales urbanos de Valparaíso. La población en estudio fueron pacientes NNA, edades 7-18 años, y sus padres. Se aplicó el instrumento CollaboRATEpediatric, que evalúa el nivel de satisfacción con el proceso de TDC. Se registró la información demográfica y su análisis según recomendaciones. Resultados: Participaron 62 parejas NNA/padres. Top Score fue alcanzado en 56% (porcentaje en que se obtuvo puntaje máximo en las 3 encuestas), sin diferencia significativa entre centros. Se observaron cifras por debajo de lo reportado a nivel internacional. Destacó la no correlación entre percepciones que los padres tienen sobre su participación en las decisiones, con respecto a las que los propios NNA manifiestan. Todas las NNA de sexo femenino se sintieron bien incorporadas en las decisiones, con una tendencia no significativa. Conclusiones: En este estudio, el score obtenido fue inferior a reportes internacionales. Se han descrito altos índices de paternalismo en latinoamericana. La diferencia entre percepciones de padres y NNA sobre incorporación de estos últimos sugiere mejorar las condiciones de atención y estrategias comunicativas. La tendencia no significativa en NNA mujeres es concordante con lo reportado. Se describe rol de género en adopción de actitud paternalista en profesionales. [ABSTRACT FROM AUTHOR]
	Copyright of Andes Pediatrica is the property of Revista Chilena de Pediatria and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database:	MedicLatina

Description
Abstract:	Changes in the current clinical relationship involve incorporating children and adolescents as subjects of rights in healthcare decisions, within their context and based on their values, through a relational autonomy approach. The shared decision-making (SDM) process has demonstrated positive effects in pediatrics and is a current social demand. Objective: To evaluate the process of patient and parent participation in healthcare decisions in neuropediatric outpatient consultations. Patients and Method: Descriptive, quantitative cross-sectional study in two urban hospitals in Valparaíso. The study population consisted of pediatric patients aged 7-18 years and their parents. The CollaboRATEpediatric instrument was used to assess the level of satisfaction with the SDM process. Demographic information was recorded and analyzed according to recommendations. Results: Sixty-two parent/child pairs participated. A Top Score was achieved in 56% of cases (the percentage in which the maximum score was obtained in the three surveys), with no significant difference between centers. The figures observed were lower than internationally reported levels. The lack of correlation between parents’ perceptions of their participation in decisions and those expressed by the children and adolescents themselves was noteworthy. All female children and adolescents felt well-involved in decision-making, although this difference was not statistically significant. Conclusions: In this study, the score obtained was lower than international reports. High rates of paternalism have been described in Latin America. The difference between parents’ and children’s perceptions of parental involvement suggests the need to improve care conditions and communication strategies. The non-significant trend among female children and adolescents is consistent with international reports. The role of gender in adopting a paternalistic attitude among professionals is described. [ABSTRACT FROM AUTHOR]
ISSN:	24526045
DOI:	10.32641/andespediatr.v97i3.5783