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Impact of sickle cell disease on patients' daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey (SWAY).

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Title: Impact of sickle cell disease on patients' daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey (SWAY).
Authors: Osunkwo I; Sickle Cell Disease Enterprise, The Levine Cancer Institute, Atrium Health, Charlotte, North Carolina, USA., Andemariam B; New England Sickle Cell Institute, University of Connecticut Health, Farmington, Connecticut, USA., Minniti CP; Albert Einstein College of Medicine, New York, New York, USA., Inusa BPD; Evelina Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK., El Rassi F; Emory University School of Medicine and Georgia Comprehensive Sickle Cell Center at Grady Health System, Atlanta, Georgia, USA., Francis-Gibson B; Sickle Cell Disease Association of America, Baltimore, Maryland, USA., Nero A; University of Texas Southwestern Medical Center, Dallas, Texas, USA., Trimnell C; Sickle Cell 101, San Jose, California, USA., Abboud MR; American University of Beirut Medical Center, Beirut, Lebanon., Arlet JB; Sickle Cell Disease Referral Centre, Internal Medicine Department, Hôpital Européen Georges-Pompidou, AP-HP, Université de Paris, Paris, France., Colombatti R; Azienda Ospedale-Università di Padova, Padova, Italy., de Montalembert M; Hôpital Universitaire Necker-Enfants Malades, Paris, France., Jain S; Thalassemia and Sickle Cell Society, Hyderabad, India., Jastaniah W; Umm Al-Qura University, Mecca, Saudi Arabia., Nur E; Academic Medical Center, Amsterdam, The Netherlands., Pita M; Pediatric Hematology, Hospital Samaritano, Laureate University-UAM, São Paulo, Brazil., DeBonnett L; Novartis Pharmaceuticals Corporation, East Hanover, New Jersey, USA., Ramscar N; Novartis Pharma AG, Basel, Switzerland., Bailey T; Adelphi Real World, Bollington, UK., Rajkovic-Hooley O; Adelphi Real World, Bollington, UK., James J; Sickle Cell Society, London, UK.
Source: American journal of hematology [Am J Hematol] 2021 Apr 01; Vol. 96 (4), pp. 404-417. Date of Electronic Publication: 2021 Feb 25.
Publication Type: Journal Article; Multicenter Study; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Wiley-Blackwell Country of Publication: United States NLM ID: 7610369 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1096-8652 (Electronic) Linking ISSN: 03618609 NLM ISO Abbreviation: Am J Hematol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Impact of sickle cell disease on patients' daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey (SWAY).
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  Data: <searchLink fieldCode="AU" term="%22Osunkwo+I%22">Osunkwo I</searchLink>; Sickle Cell Disease Enterprise, The Levine Cancer Institute, Atrium Health, Charlotte, North Carolina, USA.<br /><searchLink fieldCode="AU" term="%22Andemariam+B%22">Andemariam B</searchLink>; New England Sickle Cell Institute, University of Connecticut Health, Farmington, Connecticut, USA.<br /><searchLink fieldCode="AU" term="%22Minniti+CP%22">Minniti CP</searchLink>; Albert Einstein College of Medicine, New York, New York, USA.<br /><searchLink fieldCode="AU" term="%22Inusa+BPD%22">Inusa BPD</searchLink>; Evelina Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22El+Rassi+F%22">El Rassi F</searchLink>; Emory University School of Medicine and Georgia Comprehensive Sickle Cell Center at Grady Health System, Atlanta, Georgia, USA.<br /><searchLink fieldCode="AU" term="%22Francis-Gibson+B%22">Francis-Gibson B</searchLink>; Sickle Cell Disease Association of America, Baltimore, Maryland, USA.<br /><searchLink fieldCode="AU" term="%22Nero+A%22">Nero A</searchLink>; University of Texas Southwestern Medical Center, Dallas, Texas, USA.<br /><searchLink fieldCode="AU" term="%22Trimnell+C%22">Trimnell C</searchLink>; Sickle Cell 101, San Jose, California, USA.<br /><searchLink fieldCode="AU" term="%22Abboud+MR%22">Abboud MR</searchLink>; American University of Beirut Medical Center, Beirut, Lebanon.<br /><searchLink fieldCode="AU" term="%22Arlet+JB%22">Arlet JB</searchLink>; Sickle Cell Disease Referral Centre, Internal Medicine Department, Hôpital Européen Georges-Pompidou, AP-HP, Université de Paris, Paris, France.<br /><searchLink fieldCode="AU" term="%22Colombatti+R%22">Colombatti R</searchLink>; Azienda Ospedale-Università di Padova, Padova, Italy.<br /><searchLink fieldCode="AU" term="%22de+Montalembert+M%22">de Montalembert M</searchLink>; Hôpital Universitaire Necker-Enfants Malades, Paris, France.<br /><searchLink fieldCode="AU" term="%22Jain+S%22">Jain S</searchLink>; Thalassemia and Sickle Cell Society, Hyderabad, India.<br /><searchLink fieldCode="AU" term="%22Jastaniah+W%22">Jastaniah W</searchLink>; Umm Al-Qura University, Mecca, Saudi Arabia.<br /><searchLink fieldCode="AU" term="%22Nur+E%22">Nur E</searchLink>; Academic Medical Center, Amsterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Pita+M%22">Pita M</searchLink>; Pediatric Hematology, Hospital Samaritano, Laureate University-UAM, São Paulo, Brazil.<br /><searchLink fieldCode="AU" term="%22DeBonnett+L%22">DeBonnett L</searchLink>; Novartis Pharmaceuticals Corporation, East Hanover, New Jersey, USA.<br /><searchLink fieldCode="AU" term="%22Ramscar+N%22">Ramscar N</searchLink>; Novartis Pharma AG, Basel, Switzerland.<br /><searchLink fieldCode="AU" term="%22Bailey+T%22">Bailey T</searchLink>; Adelphi Real World, Bollington, UK.<br /><searchLink fieldCode="AU" term="%22Rajkovic-Hooley+O%22">Rajkovic-Hooley O</searchLink>; Adelphi Real World, Bollington, UK.<br /><searchLink fieldCode="AU" term="%22James+J%22">James J</searchLink>; Sickle Cell Society, London, UK.
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  Data: <searchLink fieldCode="JN" term="%227610369%22">American journal of hematology</searchLink> [Am J Hematol] 2021 Apr 01; Vol. 96 (4), pp. 404-417. <i>Date of Electronic Publication: </i>2021 Feb 25.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Wiley-Blackwell%22">Wiley-Blackwell </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>7610369 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1096-8652 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2203618609%22">03618609 </searchLink><i>NLM ISO Abbreviation: </i>Am J Hematol <i>Subsets: </i>MEDLINE
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