Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial.
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| Title: | Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial. |
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| Authors: | Hood AM; Developmental Neurosciences, Institute of Child Health, University College London, London, United Kingdom., Strong H; Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States., Nwankwo C; Department of Psychology, Oklahoma State University, Stillwater, OK, United States., Johnson Y; Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States., Peugh J; Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States., Mara CA; Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States., Shook LM; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States., Brinkman WB; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Division of General and Community Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, United States., Real FJ; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Division of General and Community Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, United States., Klein MD; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Division of General and Community Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, United States., Hackworth R; Cincinnati Children's Hospital Medical Center Partner, Cincinnati, OH, United States., Badawy SM; Department of Pediatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, United States.; Division of Hematology, Oncology and Stem Cell Transplant, Ann & Robert Lurie Children's Hospital of Chicago, Chicago, IL, United States., Thompson AA; Department of Pediatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, United States.; Division of Hematology, Oncology and Stem Cell Transplant, Ann & Robert Lurie Children's Hospital of Chicago, Chicago, IL, United States., Raphael JL; Center for Child Health Policy and Advocacy, Baylor College of Medicine, Houston, TX, United States., Yates AM; Department of Pediatrics, Division of Hematology/Oncology, Baylor College of Medicine, Houston, TX, United States., Smith-Whitley K; Children's Hospital of Philadelphia, Philadelphia, PA, United States.; Perelman School of Medicine, Philadelphia, PA, United States., King AA; Program in Occupational Therapy and Pediatrics, Division of Hematology and Oncology, Washington University School of Medicine and St. Louis Children's Hospital, St. Louis, MO, United States.; Division of Pediatric Hematology/Oncology, Washington University School of Medicine, St. Louis, MO, United States., Calhoun C; Division of Pediatric Hematology/Oncology, Washington University School of Medicine, St. Louis, MO, United States., Creary SE; Center for Innovation in Pediatric Practice, Division of Pediatric Hematology/Oncology/BMT, Nationwide Children's Hospital, Columbus, OH, United States., Piccone CM; University Hospitals Rainbow Babies and Children's Hospital, Cleveland, OH, United States., Hildenbrand AK; Center for Healthcare Delivery Science, Nemours Children's Health System, Wilmington, DE, United States.; Division of Behavioral Health, Nemours/ Alfred I duPont Hospital for Children, Wilmington, DE, United States., Reader SK; Center for Healthcare Delivery Science, Nemours Children's Health System, Wilmington, DE, United States.; Division of Behavioral Health, Nemours/ Alfred I duPont Hospital for Children, Wilmington, DE, United States., Neumayr L; Department of Hematology/Oncology, Children's Hospital Oakland, Oakland, CA, United States.; AbbVie, North Chicago, IL, United States.; University of California San Francisco, San Francisco, CA, United States., Meier ER; Pediatrics, Pediatric Hematology/Oncology, Indiana Hemophilia and Thrombosis Center, Indianapolis, IN, United States., Sobota AE; Pediatric Hematology and Oncology, Boston Medical Center, Boston, MA, United States., Rana S; Pediatrics and Child Health, College of Medicine, Howard University, Washington, DC, United States., Britto M; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Adolescent and Transition Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.; James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States., Saving KL; Department of Pediatrics, University of Illinois College of Medicine, Peoria, IL, United States., Treadwell M; Department of Hematology/Oncology, University of California San Francisco Benioff Children's Hospital, Oakland, CA, United States., Quinn CT; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Cancer and Blood Diseases Institute, Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States., Ware RE; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States., Crosby LE; Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States. |
| Source: | JMIR research protocols [JMIR Res Protoc] 2021 May 21; Vol. 10 (5), pp. e27650. Date of Electronic Publication: 2021 May 21. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: JMIR Publications Country of Publication: Canada NLM ID: 101599504 Publication Model: Electronic Cited Medium: Print ISSN: 1929-0748 (Print) Linking ISSN: 19290748 NLM ISO Abbreviation: JMIR Res Protoc Subsets: PubMed not MEDLINE |
| Database: | MEDLINE Ultimate |
| FullText | Text: Availability: 0 |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 34018965 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Hood+AM%22">Hood AM</searchLink>; Developmental Neurosciences, Institute of Child Health, University College London, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Strong+H%22">Strong H</searchLink>; Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Nwankwo+C%22">Nwankwo C</searchLink>; Department of Psychology, Oklahoma State University, Stillwater, OK, United States.<br /><searchLink fieldCode="AU" term="%22Johnson+Y%22">Johnson Y</searchLink>; Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Peugh+J%22">Peugh J</searchLink>; Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Mara+CA%22">Mara CA</searchLink>; Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Shook+LM%22">Shook LM</searchLink>; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Brinkman+WB%22">Brinkman WB</searchLink>; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Division of General and Community Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Real+FJ%22">Real FJ</searchLink>; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Division of General and Community Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Klein+MD%22">Klein MD</searchLink>; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Division of General and Community Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Hackworth+R%22">Hackworth R</searchLink>; Cincinnati Children's Hospital Medical Center Partner, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Badawy+SM%22">Badawy SM</searchLink>; Department of Pediatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, United States.; Division of Hematology, Oncology and Stem Cell Transplant, Ann & Robert Lurie Children's Hospital of Chicago, Chicago, IL, United States.<br /><searchLink fieldCode="AU" term="%22Thompson+AA%22">Thompson AA</searchLink>; Department of Pediatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, United States.; Division of Hematology, Oncology and Stem Cell Transplant, Ann & Robert Lurie Children's Hospital of Chicago, Chicago, IL, United States.<br /><searchLink fieldCode="AU" term="%22Raphael+JL%22">Raphael JL</searchLink>; Center for Child Health Policy and Advocacy, Baylor College of Medicine, Houston, TX, United States.<br /><searchLink fieldCode="AU" term="%22Yates+AM%22">Yates AM</searchLink>; Department of Pediatrics, Division of Hematology/Oncology, Baylor College of Medicine, Houston, TX, United States.<br /><searchLink fieldCode="AU" term="%22Smith-Whitley+K%22">Smith-Whitley K</searchLink>; Children's Hospital of Philadelphia, Philadelphia, PA, United States.; Perelman School of Medicine, Philadelphia, PA, United States.<br /><searchLink fieldCode="AU" term="%22King+AA%22">King AA</searchLink>; Program in Occupational Therapy and Pediatrics, Division of Hematology and Oncology, Washington University School of Medicine and St. Louis Children's Hospital, St. Louis, MO, United States.; Division of Pediatric Hematology/Oncology, Washington University School of Medicine, St. Louis, MO, United States.<br /><searchLink fieldCode="AU" term="%22Calhoun+C%22">Calhoun C</searchLink>; Division of Pediatric Hematology/Oncology, Washington University School of Medicine, St. Louis, MO, United States.<br /><searchLink fieldCode="AU" term="%22Creary+SE%22">Creary SE</searchLink>; Center for Innovation in Pediatric Practice, Division of Pediatric Hematology/Oncology/BMT, Nationwide Children's Hospital, Columbus, OH, United States.<br /><searchLink fieldCode="AU" term="%22Piccone+CM%22">Piccone CM</searchLink>; University Hospitals Rainbow Babies and Children's Hospital, Cleveland, OH, United States.<br /><searchLink fieldCode="AU" term="%22Hildenbrand+AK%22">Hildenbrand AK</searchLink>; Center for Healthcare Delivery Science, Nemours Children's Health System, Wilmington, DE, United States.; Division of Behavioral Health, Nemours/ Alfred I duPont Hospital for Children, Wilmington, DE, United States.<br /><searchLink fieldCode="AU" term="%22Reader+SK%22">Reader SK</searchLink>; Center for Healthcare Delivery Science, Nemours Children's Health System, Wilmington, DE, United States.; Division of Behavioral Health, Nemours/ Alfred I duPont Hospital for Children, Wilmington, DE, United States.<br /><searchLink fieldCode="AU" term="%22Neumayr+L%22">Neumayr L</searchLink>; Department of Hematology/Oncology, Children's Hospital Oakland, Oakland, CA, United States.; AbbVie, North Chicago, IL, United States.; University of California San Francisco, San Francisco, CA, United States.<br /><searchLink fieldCode="AU" term="%22Meier+ER%22">Meier ER</searchLink>; Pediatrics, Pediatric Hematology/Oncology, Indiana Hemophilia and Thrombosis Center, Indianapolis, IN, United States.<br /><searchLink fieldCode="AU" term="%22Sobota+AE%22">Sobota AE</searchLink>; Pediatric Hematology and Oncology, Boston Medical Center, Boston, MA, United States.<br /><searchLink fieldCode="AU" term="%22Rana+S%22">Rana S</searchLink>; Pediatrics and Child Health, College of Medicine, Howard University, Washington, DC, United States.<br /><searchLink fieldCode="AU" term="%22Britto+M%22">Britto M</searchLink>; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Adolescent and Transition Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.; James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Saving+KL%22">Saving KL</searchLink>; Department of Pediatrics, University of Illinois College of Medicine, Peoria, IL, United States.<br /><searchLink fieldCode="AU" term="%22Treadwell+M%22">Treadwell M</searchLink>; Department of Hematology/Oncology, University of California San Francisco Benioff Children's Hospital, Oakland, CA, United States.<br /><searchLink fieldCode="AU" term="%22Quinn+CT%22">Quinn CT</searchLink>; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Cancer and Blood Diseases Institute, Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Ware+RE%22">Ware RE</searchLink>; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Crosby+LE%22">Crosby LE</searchLink>; Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.; James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22101599504%22">JMIR research protocols</searchLink> [JMIR Res Protoc] 2021 May 21; Vol. 10 (5), pp. e27650. <i>Date of Electronic Publication: </i>2021 May 21. – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22JMIR+Publications%22">JMIR Publications </searchLink><i>Country of Publication: </i>Canada <i>NLM ID: </i>101599504 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Print <i>ISSN: </i>1929-0748 (Print) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2219290748%22">19290748 </searchLink><i>NLM ISO Abbreviation: </i>JMIR Res Protoc <i>Subsets: </i>PubMed not MEDLINE |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=34018965 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.2196/27650 Languages: – Code: eng Text: English PhysicalDescription: Pagination: StartPage: e27650 Titles: – TitleFull: Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Hood AM – PersonEntity: Name: NameFull: Strong H – PersonEntity: Name: NameFull: Nwankwo C – PersonEntity: Name: NameFull: Johnson Y – PersonEntity: Name: NameFull: Peugh J – PersonEntity: Name: NameFull: Mara CA – PersonEntity: Name: NameFull: Shook LM – PersonEntity: Name: NameFull: Brinkman WB – PersonEntity: Name: NameFull: Real FJ – PersonEntity: Name: NameFull: Klein MD – PersonEntity: Name: NameFull: Hackworth R – PersonEntity: Name: NameFull: Badawy SM – PersonEntity: Name: NameFull: Thompson AA – PersonEntity: Name: NameFull: Raphael JL – PersonEntity: Name: NameFull: Yates AM – PersonEntity: Name: NameFull: Smith-Whitley K – PersonEntity: Name: NameFull: King AA – PersonEntity: Name: NameFull: Calhoun C – PersonEntity: Name: NameFull: Creary SE – PersonEntity: Name: NameFull: Piccone CM – PersonEntity: Name: NameFull: Hildenbrand AK – PersonEntity: Name: NameFull: Reader SK – PersonEntity: Name: NameFull: Neumayr L – PersonEntity: Name: NameFull: Meier ER – PersonEntity: Name: NameFull: Sobota AE – PersonEntity: Name: NameFull: Rana S – PersonEntity: Name: NameFull: Britto M – PersonEntity: Name: NameFull: Saving KL – PersonEntity: Name: NameFull: Treadwell M – PersonEntity: Name: NameFull: Quinn CT – PersonEntity: Name: NameFull: Ware RE – PersonEntity: Name: NameFull: Crosby LE IsPartOfRelationships: – BibEntity: Dates: – D: 21 M: 05 Text: 2021 May 21 Type: published Y: 2021 Identifiers: – Type: issn-print Value: 1929-0748 Numbering: – Type: volume Value: 10 – Type: issue Value: 5 Titles: – TitleFull: JMIR research protocols Type: main |
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