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Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA-R).

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Title: Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA-R).
Authors: Sinning C; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany.; German Centre of Cardiovascular Research (DZHK), Partner Site Hamburg/Kiel/Lübeck, Hamburg, Germany., Zengin E; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Diller GP; Department of Cardiology III, University Hospital Münster, Münster, Germany., Onorati F; Divisione Ospedaliero Universitaria Cardiochirurgia Verona, Verona, Italy., Castel MA; Heart Failure and Heart Transplantation Unit, Cardiology Department, ICCV, Hospital Clinic Barcelona, IDIBAPS, Barcelona, Spain., Petit T; Adult Congenital and Pediatric Heart Unit, Freeman Hospital Newcastle Upon Tyne, Newcastle Upon Tyne, UK., Chen YS; Department of Cardiovascular Surgery, National Taiwan University Hospital, Taipei, Taiwan., Lo Rito M; Department of Congenital Cardiac Surgery, IRCCS Policlinico San Donato, San Donato Milanese, Italy., Chiarello C; Department of Congenital Cardiac Surgery, IRCCS Policlinico San Donato, San Donato Milanese, Italy., Guillemain R; Chirurgie cardio vasculaire, Hôpital Européen Georges-Pompidou HEGP, Paris, France., Coniat KN; Programme de transplantation et d'assistance cardiaque adulte et pédiatrique au CHU de Bordeaux, Haut Lévêque Hospital, Pessac, France., Magnussen C; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany.; German Centre of Cardiovascular Research (DZHK), Partner Site Hamburg/Kiel/Lübeck, Hamburg, Germany., Knappe D; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Becher PM; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany.; German Centre of Cardiovascular Research (DZHK), Partner Site Hamburg/Kiel/Lübeck, Hamburg, Germany., Schrage B; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany.; German Centre of Cardiovascular Research (DZHK), Partner Site Hamburg/Kiel/Lübeck, Hamburg, Germany., Smits JM; Eurotransplant, Leiden, The Netherlands., Metzner A; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Knosalla C; Department of Cardiothoracic and Vascular Surgery, German Heart Center Berlin, Berlin, Germany.; German Centre of Cardiovascular Research DZHK (German Center for Cardiovascular Research), Partner Site Berlin, Berlin, Germany.; Charité University Medicine Berlin, Corporate Member of Freie University Berlin, Humboldt-University Berlin, and Berlin Institute of Health, Berlin, Germany., Schoenrath F; Department of Cardiothoracic and Vascular Surgery, German Heart Center Berlin, Berlin, Germany.; German Centre of Cardiovascular Research DZHK (German Center for Cardiovascular Research), Partner Site Berlin, Berlin, Germany., Miera O; Department of Congenital Heart Disease/Pediatric Cardiology, German Heart Center Berlin, Berlin, Germany., Cho MY; Department of Congenital Heart Surgery/Pediatric Heart Surgery German Heart Center Berlin, Berlin, Germany., Bernhardt A; German Centre of Cardiovascular Research (DZHK), Partner Site Hamburg/Kiel/Lübeck, Hamburg, Germany.; Department of Cardiovascular Surgery, University Heart and Vascular Center Hamburg, Hamburg, Germany., Weimann J; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Goßling A; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Terzi A; ASST Papa Giovanni XXIII, Bergamo, Italy., Amodeo A; Bambino Gesù Pediatric Hospital and Research Institute, Rome, Italy., Alfieri S; Bambino Gesù Pediatric Hospital and Research Institute, Rome, Italy., Angeli E; Pediatric Cardiac Surgery and Adult Congenital Heart Disease Program, Department of Cardio - Thoracic and Vascular Medicine, IRCCS Azienda Ospedaliero - Universitaria di Bologna, Bologna, Italy., Ragni L; Pediatric Cardiology and Adult Congenital Heart Disease Program, Department of Cardio-Thoracic and Vascular Medicine, IRCCS Azienda Ospedaliero-Universitaria di Bologna, Bologna, Italy., Napoleone CP; A.O.U Cittá della Salute e della Scienza, Torino, Italy., Gerosa G; Cardiac Surgery Unit, Cardio-Thoraco-Vascular and Public Health Department, Padova University Hospital, University of Padova, Padova, Italy., Pradegan N; Cardiac Surgery Unit, Cardio-Thoraco-Vascular and Public Health Department, Padova University Hospital, University of Padova, Padova, Italy., Rodrigus I; Department of Cardiac Surgery, Universitair Ziekenhuis Antwerpen, Antwerpen, Belgium., Dumfarth J; Department of Cardiac Surgery, University of Innsbruck, Innsbruck, Austria., de Pauw M; Department of Cardiology, Universitair Ziekenhuis Gent, Ghent, Belgium., François K; Department of Cardiovascular Surgery, Universitair Ziekenhuis Gent, Ghent, Belgium., Van Caenegem O; Division of Cardiovascular Intensive Care and Heart Transplantation, Cliniques Universitaires Saint-Luc, Brussels, Belgium., Ancion A; Department of Cardiology, Centre Hospitalier Universitaire de Liège, Liège, Belgium., Van Cleemput J; Department of Cardiology, Universitair Ziekenhuis Leuven, Leuven, Belgium., Miličić D; Department of Cardiology, Medical Faculty University of Zagreb, Zagreb, Croatia., Moza A; Department of Cardiovascular Surgery, University Hospital Aachen, Aachen, Germany., Schenker P; Department of Surgery, University Hospital Bochum, Bochum, Germany., Thul J; Department of Pediatric Cardiology, University Hospital Giessen/Marburg, Giessen, Germany., Steinmetz M; Department of Pediatric Cardiology, University Hospital Göttingen, Göttingen, Germany.; German Center of Cardiovascular Research (DZHK), Partner Site Göttingen, Göttingen, Germany., Warnecke G; Department of Cardiac Surgery, University Hospital Heidelberg, Heidelberg, Germany., Ius F; Department of Cardiothoracic, Transplantation and Vascular Surgery, Hannover Medical School, Hannover, Germany., Freyt S; Department of Cardiothoracic, Transplantation and Vascular Surgery, Hannover Medical School, Hannover, Germany., Avsar M; Department of Cardiothoracic, Transplantation and Vascular Surgery, Hannover Medical School, Hannover, Germany., Sandhaus T; Department of Cardiovascular Surgery, University Hospital Jena, Jena, Germany., Haneya A; Department of Cardiovascular Surgery, University Hospital Schleswig-Holstein, Kiel, Germany., Eifert S; Department of Cardiovascular Surgery, Heart Center Leipzig, Leipzig, Germany., Saeed D; Department of Cardiovascular Surgery, Heart Center Leipzig, Leipzig, Germany., Borger M; Department of Cardiovascular Surgery, Heart Center Leipzig, Leipzig, Germany., Welp H; Department of Cardiac Surgery, University Hospital Münster, Münster, Germany., Ablonczy L; Gottsegen György Hungarian Institute of Cardiology, Budapest, Hungary., Schmack B; Department of Thoracic and Cardiovascular Surgery, West German Heart and Vascular Center, University of Duisburg-Essen, Essen, Germany., Ruhparwar A; Department of Thoracic and Cardiovascular Surgery, West German Heart and Vascular Center, University of Duisburg-Essen, Essen, Germany., Naito S; Department of Cardiovascular Surgery, University Heart and Vascular Center Hamburg, Hamburg, Germany., Hua X; Department of Cardiovascular Surgery, University Heart and Vascular Center Hamburg, Hamburg, Germany., Fluschnik N; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Nies M; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Keil L; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Senftinger J; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Ismaili D; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Kany S; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Csengeri D; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany., Cardillo M; Centro Nazionale Trapianti, Rome, Italy., Oliveti A; Centro Nazionale Trapianti, Rome, Italy., Faggian G; Divisione Ospedaliero Universitaria Cardiochirurgia Verona, Verona, Italy., Dorent R; Agence de la Biomédecine, Saint-Denis, Paris, France., Jasseron C; Agence de la Biomédecine, Saint-Denis, Paris, France., Blanco AP; Organización Nacional de Trasplantes, Madrid, Spain., Márquez JMS; Heart Failure and Transplant Unit, Virgen del Rocío Hospital Sevilla, Sevilla, Spain., López-Vilella R; Heart Failure and Transplantation Unit, Hospital Universitario y Politécnico La Fe, Valencia, Spain., García-Álvarez A; Heart Failure and Heart Transplantation Unit, Cardiology Department, ICCV, Hospital Clinic Barcelona, IDIBAPS, Barcelona, Spain., López MLP; Cirugia Cardiovascular, Servicio de Cirugia Cardiovascular Infantil y de Cardiopatías Congénitas, Hospital Universitario La Paz, Madrid, Spain., Rocafort AG; Cirugia Cardiovascular, Servicio de Cirugia Cardiovascular Infantil y de Cardiopatías Congénitas, Hospital Universitario La Paz, Madrid, Spain., Fernández ÓG; Heart Failure and Transplant Unit, Cardiology Department, Hospital Universitario La Paz, Madrid, Spain., Prieto-Arevalo R; Department of Cardiology, Gregorio Marañon University Hospital CIBER-CV, Madrid, Spain., Zatarain-Nicolás E; Department of Cardiology, Gregorio Marañon University Hospital CIBER-CV, Madrid, Spain., Blanchart K; Service de Cardiologie, CHU de Caen Normandie, Caen, France., Boignard A; Department of Cardiology and Cardiovascular Surgery, CHU Michallon, Grenoble, France., Battistella P; Department of Cardiology, Montpellier University Hospital, Montpellier Cedex 5, France., Guendouz S; Département de Cardiologie, Hôpital Henri-Mondor, Assistance Publique-Hôpitaux de Paris, Créteil, France., Houyel L; M3C-Necker Enfants malades, AP-HP, Université de Paris, Paris, France., Para M; Department of Cardiovascular Surgery and Transplantation, Bichat Hospital, AP-HP, Paris, France., Flecher E; Division of Thoracic and Cardiovascular Surgery, Rennes University Hospital, Rennes, France., Gay A; Thoracic and Cardiovascular Surgery Department, Rouen University Hospital, Rouen, France., Épailly É; Department of Cardiac Surgery, Strasbourg University Hospital, Strasbourg, France., Dambrin C; Service de Cardiologie, Centre Hospitalier Universitaire de Toulouse, Toulouse, France., Lam K; Department of Cardiology, Fiona Stanly Hospital, Perth, Australia., Ka-Lai CH; Department of Cardiothoracic Surgery, Queen Mary Hospital, Hong Kong, China., Cho YH; Department of Thoracic and Cardiovascular Surgery, Sungkyunkwan University, Seoul, South Korea., Choi JO; Division of Cardiology, Department of Medicine, Sungkyunkwan University, Seoul, South Korea., Kim JJ; Department of Internal Medicine, Asan Medical Center, University of Ulsan College of Medicine, Seoul, South Korea., Coats L; Adult Congenital and Pediatric Heart Unit, Freeman Hospital Newcastle Upon Tyne, Newcastle Upon Tyne, UK.; Congenital Heart Disease Research Group, Population Health Sciences Institute Newcastle University, Newcastle upon Tyne, UK., Crossland DS; Adult Congenital and Pediatric Heart Unit, Freeman Hospital Newcastle Upon Tyne, Newcastle Upon Tyne, UK.; Congenital Heart Disease Research Group, Population Health Sciences Institute Newcastle University, Newcastle upon Tyne, UK., Mumford L; NHS Blood and Transplant, Bristol, UK., Hakmi S; Department of Cardiology & Critical Care Medicine, Asklepios Klinik St. Georg, Hamburg, Germany., Sivathasan C; Department of Cardiothoracic Surgery, Mount Elizabeth Medical Centre, Singapore, Singapore., Fabritz L; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany.; Institute of Cardiovacsular Sciences and SWBH and UHB NHS Trusts, Birmingham, UK.; Department of Cardiology, University Hospital Birmingham, Birmingham, UK., Schubert S; Center for Congenital Heart Disease/Pediatric Cardiology, Heart and Diabetes Center NRW, Ruhr-University Bochum, Bad Oeynhausen, Germany., Gummert J; Department for Thoracic and Cardiovascular Surgery, Heart and Diabetes Center NRW, Ruhr-University Bochum, Bad Oeynhausen, Germany., Hübler M; German Centre of Cardiovascular Research (DZHK), Partner Site Hamburg/Kiel/Lübeck, Hamburg, Germany.; Department of Pediatric Cardiac Surgery, University Heart & Vascular Center Hamburg, Hamburg, Germany., Jacksch P; Department of Thoracic Surgery, Medical University of Vienna, Vienna, Austria., Zuckermann A; Department of Cardiac Surgery, Medical University of Vienna, Vienna, Austria., Laufer G; Department of Cardiac Surgery, Medical University of Vienna, Vienna, Austria., Baumgartner H; Department of Cardiology III, University Hospital Münster, Münster, Germany., Giamberti A; Department of Congenital Cardiac Surgery, IRCCS Policlinico San Donato, San Donato Milanese, Italy., Reichenspurner H; German Centre of Cardiovascular Research (DZHK), Partner Site Hamburg/Kiel/Lübeck, Hamburg, Germany.; Department of Cardiovascular Surgery, University Heart and Vascular Center Hamburg, Hamburg, Germany., Kirchhof P; Department of Cardiology, University Heart and Vascular Centre Hamburg, Hamburg, Germany.; German Centre of Cardiovascular Research (DZHK), Partner Site Hamburg/Kiel/Lübeck, Hamburg, Germany.; Institute of Cardiovacsular Sciences and SWBH and UHB NHS Trusts, Birmingham, UK.
Source: ESC heart failure [ESC Heart Fail] 2021 Dec; Vol. 8 (6), pp. 5542-5550. Date of Electronic Publication: 2021 Sep 12.
Publication Type: Journal Article
Journal Info: Publisher: John Wiley & Sons Ltd on behalf of the European Society of Cardiology Country of Publication: England NLM ID: 101669191 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2055-5822 (Electronic) Linking ISSN: 20555822 NLM ISO Abbreviation: ESC Heart Fail Subsets: MEDLINE
Database: MEDLINE Ultimate
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ISSN:2055-5822
DOI:10.1002/ehf2.13574