Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS.

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Title: Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS.
Authors: Moons P; KU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000 Leuven, Belgium.; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa., Luyckx K; School Psychology and Child and Adolescent Development, KU Leuven - University of Leuven, Leuven, Belgium.; UNIBS, University of the Free State, Bloemfontein, South Africa., Thomet C; KU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000 Leuven, Belgium.; Center for Congenital Heart Disease, Inselspital - Bern University Hospital, University of Bern, Bern, Switzerland., Budts W; Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium.; KU Leuven Department of Cardiovascular Sciences, KU Leuven - University of Leuven, Leuven, Belgium., Enomoto J; Department of Education, Toyo University, Tokyo, Japan., Sluman MA; Department of Cardiology, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.; Department of Cardiology, Jeroen Bosch Hospital, 's Hertogenbosch, the Netherlands., Yang HL; School of Nursing, College of Medicine, National Taiwan University, Taipei, Taiwan., Jackson JL; Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA., Khairy P; Adult Congenital Heart Center, Montreal Heart Institute, Université de Montréal, Montreal, Canada., Cook SC; Adult Congenital Heart Disease Program, Indiana University Health, Indianapolis, IN, USA., Chidambarathanu S; Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India., Alday L; Division of Cardiology, Hospital de Niños, Córdoba, Argentina., Oechslin E; Toronto Adult Congenital Heart Disease Program, University Health Network, University of Toronto, Toronto, Canada., Eriksen K; Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway., Dellborg M; Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden., Berghammer M; Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.; Department of Health Sciences, University West, Trollhättan, Sweden.; Department of Paediatrics, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden., Johansson B; Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden., Mackie AS; Division of Cardiology, Stollery Children's Hospital, University of Alberta, Edmonton, Canada., Menahem S; Monash Heart, Monash Medical Centre, Monash University, Melbourne, Australia., Caruana M; Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta., Veldtman G; Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA., Soufi A; Department of Cardiac Rehabilitation, Médipôle Lyon-Villeurbanne, Lyon, France., Fernandes SM; Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, CA, USA., White K; Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, Saint Louis, MO, USA., Callus E; Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.; Department of Biomedical Sciences for Health, Università degli Studi di Milano, Milan, Italy., Kutty S; Adult Congenital Heart Disease Center University of Nebraska Medical Center/Children's Hospital and Medical Center, Omaha, NE, USA.; Taussig Heart Center, Johns Hopkins School of Medicine, Baltimore, MD, USA., Kovacs AH; Toronto Adult Congenital Heart Disease Program, University Health Network, University of Toronto, Toronto, Canada.
Corporate Authors: APPROACH-IS consortium
Source: European journal of cardiovascular nursing [Eur J Cardiovasc Nurs] 2023 May 25; Vol. 22 (4), pp. 339-344.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 101128793 Publication Model: Print Cited Medium: Internet ISSN: 1873-1953 (Electronic) Linking ISSN: 14745151 NLM ISO Abbreviation: Eur J Cardiovasc Nurs Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS.
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  Data: <searchLink fieldCode="AU" term="%22Moons+P%22">Moons P</searchLink>; KU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000 Leuven, Belgium.; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.<br /><searchLink fieldCode="AU" term="%22Luyckx+K%22">Luyckx K</searchLink>; School Psychology and Child and Adolescent Development, KU Leuven - University of Leuven, Leuven, Belgium.; UNIBS, University of the Free State, Bloemfontein, South Africa.<br /><searchLink fieldCode="AU" term="%22Thomet+C%22">Thomet C</searchLink>; KU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000 Leuven, Belgium.; Center for Congenital Heart Disease, Inselspital - Bern University Hospital, University of Bern, Bern, Switzerland.<br /><searchLink fieldCode="AU" term="%22Budts+W%22">Budts W</searchLink>; Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium.; KU Leuven Department of Cardiovascular Sciences, KU Leuven - University of Leuven, Leuven, Belgium.<br /><searchLink fieldCode="AU" term="%22Enomoto+J%22">Enomoto J</searchLink>; Department of Education, Toyo University, Tokyo, Japan.<br /><searchLink fieldCode="AU" term="%22Sluman+MA%22">Sluman MA</searchLink>; Department of Cardiology, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.; Department of Cardiology, Jeroen Bosch Hospital, 's Hertogenbosch, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Yang+HL%22">Yang HL</searchLink>; School of Nursing, College of Medicine, National Taiwan University, Taipei, Taiwan.<br /><searchLink fieldCode="AU" term="%22Jackson+JL%22">Jackson JL</searchLink>; Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA.<br /><searchLink fieldCode="AU" term="%22Khairy+P%22">Khairy P</searchLink>; Adult Congenital Heart Center, Montreal Heart Institute, Université de Montréal, Montreal, Canada.<br /><searchLink fieldCode="AU" term="%22Cook+SC%22">Cook SC</searchLink>; Adult Congenital Heart Disease Program, Indiana University Health, Indianapolis, IN, USA.<br /><searchLink fieldCode="AU" term="%22Chidambarathanu+S%22">Chidambarathanu S</searchLink>; Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India.<br /><searchLink fieldCode="AU" term="%22Alday+L%22">Alday L</searchLink>; Division of Cardiology, Hospital de Niños, Córdoba, Argentina.<br /><searchLink fieldCode="AU" term="%22Oechslin+E%22">Oechslin E</searchLink>; Toronto Adult Congenital Heart Disease Program, University Health Network, University of Toronto, Toronto, Canada.<br /><searchLink fieldCode="AU" term="%22Eriksen+K%22">Eriksen K</searchLink>; Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22Dellborg+M%22">Dellborg M</searchLink>; Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden.<br /><searchLink fieldCode="AU" term="%22Berghammer+M%22">Berghammer M</searchLink>; Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.; Department of Health Sciences, University West, Trollhättan, Sweden.; Department of Paediatrics, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.<br /><searchLink fieldCode="AU" term="%22Johansson+B%22">Johansson B</searchLink>; Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden.<br /><searchLink fieldCode="AU" term="%22Mackie+AS%22">Mackie AS</searchLink>; Division of Cardiology, Stollery Children's Hospital, University of Alberta, Edmonton, Canada.<br /><searchLink fieldCode="AU" term="%22Menahem+S%22">Menahem S</searchLink>; Monash Heart, Monash Medical Centre, Monash University, Melbourne, Australia.<br /><searchLink fieldCode="AU" term="%22Caruana+M%22">Caruana M</searchLink>; Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta.<br /><searchLink fieldCode="AU" term="%22Veldtman+G%22">Veldtman G</searchLink>; Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.<br /><searchLink fieldCode="AU" term="%22Soufi+A%22">Soufi A</searchLink>; Department of Cardiac Rehabilitation, Médipôle Lyon-Villeurbanne, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Fernandes+SM%22">Fernandes SM</searchLink>; Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, CA, USA.<br /><searchLink fieldCode="AU" term="%22White+K%22">White K</searchLink>; Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, Saint Louis, MO, USA.<br /><searchLink fieldCode="AU" term="%22Callus+E%22">Callus E</searchLink>; Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.; Department of Biomedical Sciences for Health, Università degli Studi di Milano, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Kutty+S%22">Kutty S</searchLink>; Adult Congenital Heart Disease Center University of Nebraska Medical Center/Children's Hospital and Medical Center, Omaha, NE, USA.; Taussig Heart Center, Johns Hopkins School of Medicine, Baltimore, MD, USA.<br /><searchLink fieldCode="AU" term="%22Kovacs+AH%22">Kovacs AH</searchLink>; Toronto Adult Congenital Heart Disease Program, University Health Network, University of Toronto, Toronto, Canada.
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