Patient Perspective on Acute Hepatic Porphyria with Sporadic Attacks: A Chronic Disease with Substantial Health-Related Quality of Life Impacts.
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| Title: | Patient Perspective on Acute Hepatic Porphyria with Sporadic Attacks: A Chronic Disease with Substantial Health-Related Quality of Life Impacts. |
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| Authors: | Wheeden K; American Porphyria Foundation, 4915 St. Elmo Avenue, Suite 200, Bethesda, MD, USA., Lyon Howe D; American Porphyria Foundation, 4915 St. Elmo Avenue, Suite 200, Bethesda, MD, USA., Burrell S; British Porphyria Association, Durham, UK., Gill L; British Porphyria Association, Durham, UK., Chamberlayne J; British Porphyria Association, Durham, UK., Williams ER; American Porphyria Foundation, 4915 St. Elmo Avenue, Suite 200, Bethesda, MD, USA., Simon A; Alnylam Pharmaceuticals, Cambridge, MA, USA., Ko JJ; Alnylam Pharmaceuticals, Cambridge, MA, USA., Mora J; Alnylam Pharmaceuticals, Cambridge, MA, USA., Wells T; Endpoint Outcomes, Boston, MA, USA., Evans C; Endpoint Outcomes, Boston, MA, USA., Paulich M; Endpoint Outcomes, Boston, MA, USA., Meninger S; Alnylam Pharmaceuticals, Cambridge, MA, USA., Lombardelli S; Alnylam Pharmaceuticals, Cambridge, MA, USA. slombardelli@alnylam.com. |
| Source: | Advances in therapy [Adv Ther] 2022 Sep; Vol. 39 (9), pp. 4330-4345. Date of Electronic Publication: 2022 Jul 30. |
| Publication Type: | Journal Article; Research Support, Non-U.S. Gov't |
| Journal Info: | Publisher: Health Communications Inc Country of Publication: United States NLM ID: 8611864 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1865-8652 (Electronic) Linking ISSN: 0741238X NLM ISO Abbreviation: Adv Ther |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1865-8652 |
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| DOI: | 10.1007/s12325-022-02172-8 |
