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Patient Perspective on Acute Hepatic Porphyria with Sporadic Attacks: A Chronic Disease with Substantial Health-Related Quality of Life Impacts.

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Title: Patient Perspective on Acute Hepatic Porphyria with Sporadic Attacks: A Chronic Disease with Substantial Health-Related Quality of Life Impacts.
Authors: Wheeden K; American Porphyria Foundation, 4915 St. Elmo Avenue, Suite 200, Bethesda, MD, USA., Lyon Howe D; American Porphyria Foundation, 4915 St. Elmo Avenue, Suite 200, Bethesda, MD, USA., Burrell S; British Porphyria Association, Durham, UK., Gill L; British Porphyria Association, Durham, UK., Chamberlayne J; British Porphyria Association, Durham, UK., Williams ER; American Porphyria Foundation, 4915 St. Elmo Avenue, Suite 200, Bethesda, MD, USA., Simon A; Alnylam Pharmaceuticals, Cambridge, MA, USA., Ko JJ; Alnylam Pharmaceuticals, Cambridge, MA, USA., Mora J; Alnylam Pharmaceuticals, Cambridge, MA, USA., Wells T; Endpoint Outcomes, Boston, MA, USA., Evans C; Endpoint Outcomes, Boston, MA, USA., Paulich M; Endpoint Outcomes, Boston, MA, USA., Meninger S; Alnylam Pharmaceuticals, Cambridge, MA, USA., Lombardelli S; Alnylam Pharmaceuticals, Cambridge, MA, USA. slombardelli@alnylam.com.
Source: Advances in therapy [Adv Ther] 2022 Sep; Vol. 39 (9), pp. 4330-4345. Date of Electronic Publication: 2022 Jul 30.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Health Communications Inc Country of Publication: United States NLM ID: 8611864 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1865-8652 (Electronic) Linking ISSN: 0741238X NLM ISO Abbreviation: Adv Ther
Database: MEDLINE Ultimate
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  Data: Patient Perspective on Acute Hepatic Porphyria with Sporadic Attacks: A Chronic Disease with Substantial Health-Related Quality of Life Impacts.
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  Data: <searchLink fieldCode="AU" term="%22Wheeden+K%22">Wheeden K</searchLink>; American Porphyria Foundation, 4915 St. Elmo Avenue, Suite 200, Bethesda, MD, USA.<br /><searchLink fieldCode="AU" term="%22Lyon+Howe+D%22">Lyon Howe D</searchLink>; American Porphyria Foundation, 4915 St. Elmo Avenue, Suite 200, Bethesda, MD, USA.<br /><searchLink fieldCode="AU" term="%22Burrell+S%22">Burrell S</searchLink>; British Porphyria Association, Durham, UK.<br /><searchLink fieldCode="AU" term="%22Gill+L%22">Gill L</searchLink>; British Porphyria Association, Durham, UK.<br /><searchLink fieldCode="AU" term="%22Chamberlayne+J%22">Chamberlayne J</searchLink>; British Porphyria Association, Durham, UK.<br /><searchLink fieldCode="AU" term="%22Williams+ER%22">Williams ER</searchLink>; American Porphyria Foundation, 4915 St. Elmo Avenue, Suite 200, Bethesda, MD, USA.<br /><searchLink fieldCode="AU" term="%22Simon+A%22">Simon A</searchLink>; Alnylam Pharmaceuticals, Cambridge, MA, USA.<br /><searchLink fieldCode="AU" term="%22Ko+JJ%22">Ko JJ</searchLink>; Alnylam Pharmaceuticals, Cambridge, MA, USA.<br /><searchLink fieldCode="AU" term="%22Mora+J%22">Mora J</searchLink>; Alnylam Pharmaceuticals, Cambridge, MA, USA.<br /><searchLink fieldCode="AU" term="%22Wells+T%22">Wells T</searchLink>; Endpoint Outcomes, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Evans+C%22">Evans C</searchLink>; Endpoint Outcomes, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Paulich+M%22">Paulich M</searchLink>; Endpoint Outcomes, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Meninger+S%22">Meninger S</searchLink>; Alnylam Pharmaceuticals, Cambridge, MA, USA.<br /><searchLink fieldCode="AU" term="%22Lombardelli+S%22">Lombardelli S</searchLink>; Alnylam Pharmaceuticals, Cambridge, MA, USA. slombardelli@alnylam.com.
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  Data: <searchLink fieldCode="JN" term="%228611864%22">Advances in therapy</searchLink> [Adv Ther] 2022 Sep; Vol. 39 (9), pp. 4330-4345. <i>Date of Electronic Publication: </i>2022 Jul 30.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Health+Communications+Inc%22">Health Communications Inc </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>8611864 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1865-8652 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%220741238X%22">0741238X </searchLink><i>NLM ISO Abbreviation: </i>Adv Ther
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        Value: 10.1007/s12325-022-02172-8
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              Text: 2022 Sep
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