Rare diseases in Tanzania: a National Call for Action to address policy and urgent needs of individuals with rare diseases.
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| Title: | Rare diseases in Tanzania: a National Call for Action to address policy and urgent needs of individuals with rare diseases. |
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| Authors: | Kaywanga F; Department of Haematology and Blood Transfusion, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania., Alimohamed MZ; Department of Haematology and Blood Transfusion, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Shree Hindu Mandal Hospital, Dar es Salaam, Tanzania.; Department of Genetics, University Medical Centre Groningen, University of Groningen, Groningen, The Netherlands., David AB; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Department of Molecular Biology and Biotechnology, University of Dar Es Salaam, Dar es Salaam, Tanzania.; Plant Protection Department, Swedish University of Agricultural Sciences, Alnarp, Sweden., Maeda D; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Department of Molecular Biology and Biotechnology, University of Dar Es Salaam, Dar es Salaam, Tanzania., Mbarak S; Ali Kimara Rare Diseases Foundation, Dar es Salaam, Tanzania., Mavura T; Ali Kimara Rare Diseases Foundation, Dar es Salaam, Tanzania.; Jakaya Mrisho Kikwete Foundation, Dar es Salaam, Tanzania., Nkya S; Department of Haematology and Blood Transfusion, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Dar es Salaam University College of Education, University of Dar es Salaam, Dar es Salaam, Tanzania., Ishengoma DS; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania. deusishe@yahoo.com.; National Institute for Medical Research, 3 Baraka Obama Drive, P. O Box 9653, 11101, Dar es Salaam, Tanzania. deusishe@yahoo.com.; Faculty of Pharmaceutical Sciences, Monash University, Melbourne, Australia. deusishe@yahoo.com.; Harvard T.H Chan School of Public Health, Boston, MA, USA. deusishe@yahoo.com. |
| Source: | Orphanet journal of rare diseases [Orphanet J Rare Dis] 2022 Sep 05; Vol. 17 (1), pp. 343. Date of Electronic Publication: 2022 Sep 05. |
| Publication Type: | Journal Article; Research Support, Non-U.S. Gov't |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1750-1172 |
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| DOI: | 10.1186/s13023-022-02498-0 |
