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Rare diseases in Tanzania: a National Call for Action to address policy and urgent needs of individuals with rare diseases.

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Title: Rare diseases in Tanzania: a National Call for Action to address policy and urgent needs of individuals with rare diseases.
Authors: Kaywanga F; Department of Haematology and Blood Transfusion, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania., Alimohamed MZ; Department of Haematology and Blood Transfusion, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Shree Hindu Mandal Hospital, Dar es Salaam, Tanzania.; Department of Genetics, University Medical Centre Groningen, University of Groningen, Groningen, The Netherlands., David AB; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Department of Molecular Biology and Biotechnology, University of Dar Es Salaam, Dar es Salaam, Tanzania.; Plant Protection Department, Swedish University of Agricultural Sciences, Alnarp, Sweden., Maeda D; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Department of Molecular Biology and Biotechnology, University of Dar Es Salaam, Dar es Salaam, Tanzania., Mbarak S; Ali Kimara Rare Diseases Foundation, Dar es Salaam, Tanzania., Mavura T; Ali Kimara Rare Diseases Foundation, Dar es Salaam, Tanzania.; Jakaya Mrisho Kikwete Foundation, Dar es Salaam, Tanzania., Nkya S; Department of Haematology and Blood Transfusion, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Dar es Salaam University College of Education, University of Dar es Salaam, Dar es Salaam, Tanzania., Ishengoma DS; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania. deusishe@yahoo.com.; National Institute for Medical Research, 3 Baraka Obama Drive, P. O Box 9653, 11101, Dar es Salaam, Tanzania. deusishe@yahoo.com.; Faculty of Pharmaceutical Sciences, Monash University, Melbourne, Australia. deusishe@yahoo.com.; Harvard T.H Chan School of Public Health, Boston, MA, USA. deusishe@yahoo.com.
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2022 Sep 05; Vol. 17 (1), pp. 343. Date of Electronic Publication: 2022 Sep 05.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Rare diseases in Tanzania: a National Call for Action to address policy and urgent needs of individuals with rare diseases.
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  Data: <searchLink fieldCode="AU" term="%22Kaywanga+F%22">Kaywanga F</searchLink>; Department of Haematology and Blood Transfusion, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.<br /><searchLink fieldCode="AU" term="%22Alimohamed+MZ%22">Alimohamed MZ</searchLink>; Department of Haematology and Blood Transfusion, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Shree Hindu Mandal Hospital, Dar es Salaam, Tanzania.; Department of Genetics, University Medical Centre Groningen, University of Groningen, Groningen, The Netherlands.<br /><searchLink fieldCode="AU" term="%22David+AB%22">David AB</searchLink>; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Department of Molecular Biology and Biotechnology, University of Dar Es Salaam, Dar es Salaam, Tanzania.; Plant Protection Department, Swedish University of Agricultural Sciences, Alnarp, Sweden.<br /><searchLink fieldCode="AU" term="%22Maeda+D%22">Maeda D</searchLink>; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Department of Molecular Biology and Biotechnology, University of Dar Es Salaam, Dar es Salaam, Tanzania.<br /><searchLink fieldCode="AU" term="%22Mbarak+S%22">Mbarak S</searchLink>; Ali Kimara Rare Diseases Foundation, Dar es Salaam, Tanzania.<br /><searchLink fieldCode="AU" term="%22Mavura+T%22">Mavura T</searchLink>; Ali Kimara Rare Diseases Foundation, Dar es Salaam, Tanzania.; Jakaya Mrisho Kikwete Foundation, Dar es Salaam, Tanzania.<br /><searchLink fieldCode="AU" term="%22Nkya+S%22">Nkya S</searchLink>; Department of Haematology and Blood Transfusion, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania.; Dar es Salaam University College of Education, University of Dar es Salaam, Dar es Salaam, Tanzania.<br /><searchLink fieldCode="AU" term="%22Ishengoma+DS%22">Ishengoma DS</searchLink>; Tanzania Human Genetics Organization, Dar es Salaam, Tanzania. deusishe@yahoo.com.; National Institute for Medical Research, 3 Baraka Obama Drive, P. O Box 9653, 11101, Dar es Salaam, Tanzania. deusishe@yahoo.com.; Faculty of Pharmaceutical Sciences, Monash University, Melbourne, Australia. deusishe@yahoo.com.; Harvard T.H Chan School of Public Health, Boston, MA, USA. deusishe@yahoo.com.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2022 Sep 05; Vol. 17 (1), pp. 343. <i>Date of Electronic Publication: </i>2022 Sep 05.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101266602 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1750-1172 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2217501172%22">17501172 </searchLink><i>NLM ISO Abbreviation: </i>Orphanet J Rare Dis <i>Subsets: </i>MEDLINE
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        Value: 10.1186/s13023-022-02498-0
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        Text: English
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              Text: 2022 Sep 05
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              Y: 2022
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