A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey.

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Title: A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey.
Authors: Boyce D; Johns Hopkins University School of Medicine, Baltimore, MD, USA., Robinson M; Independent ALS Patient Advocate, Denver, CO, USA., Cedarbaum JM; Coeruleus Clinical Sciences, Woodbridge, CT, USA.; Yale School of Medicine, New Haven, CT, USA., Shank LM; Independent researcher, Glen Burnie, MD, USA., McDermott CJ; Department of Neuroscience, The University of Sheffield, Sheffield, South Yorkshire, UK., van Eijk RPA; Department of Neurology, UMC, Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, the Netherlands.; Biostatistics & Research Support, Julius Centre for Health Sciences and Primary Care, University Medical Centre Utrecht, Utrecht, the Netherlands.
Source: Amyotrophic lateral sclerosis & frontotemporal degeneration [Amyotroph Lateral Scler Frontotemporal Degener] 2023 May; Vol. 24 (3-4), pp. 272-280. Date of Electronic Publication: 2022 Nov 04.
Publication Type: Journal Article
Journal Info: Publisher: Taylor & Francis Country of Publication: England NLM ID: 101587185 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2167-9223 (Electronic) Linking ISSN: 21678421 NLM ISO Abbreviation: Amyotroph Lateral Scler Frontotemporal Degener Subsets: MEDLINE
Database: MEDLINE Ultimate
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Description
ISSN:2167-9223
DOI:10.1080/21678421.2022.2140592