View in EDS HTML Full Text PDF Full Text

A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey.

Saved in:
Bibliographic Details
Title: A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey.
Authors: Boyce D; Johns Hopkins University School of Medicine, Baltimore, MD, USA., Robinson M; Independent ALS Patient Advocate, Denver, CO, USA., Cedarbaum JM; Coeruleus Clinical Sciences, Woodbridge, CT, USA.; Yale School of Medicine, New Haven, CT, USA., Shank LM; Independent researcher, Glen Burnie, MD, USA., McDermott CJ; Department of Neuroscience, The University of Sheffield, Sheffield, South Yorkshire, UK., van Eijk RPA; Department of Neurology, UMC, Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, the Netherlands.; Biostatistics & Research Support, Julius Centre for Health Sciences and Primary Care, University Medical Centre Utrecht, Utrecht, the Netherlands.
Source: Amyotrophic lateral sclerosis & frontotemporal degeneration [Amyotroph Lateral Scler Frontotemporal Degener] 2023 May; Vol. 24 (3-4), pp. 272-280. Date of Electronic Publication: 2022 Nov 04.
Publication Type: Journal Article
Journal Info: Publisher: Taylor & Francis Country of Publication: England NLM ID: 101587185 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2167-9223 (Electronic) Linking ISSN: 21678421 NLM ISO Abbreviation: Amyotroph Lateral Scler Frontotemporal Degener Subsets: MEDLINE
Database: MEDLINE Ultimate
Full text is not displayed to guests.
FullText Links:
  – Type: pdflink
Text:
  Availability: 1
Header DbId: mdl
DbLabel: MEDLINE Ultimate
An: 36330850
AccessLevel: 2
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AU" term="%22Boyce+D%22">Boyce D</searchLink>; Johns Hopkins University School of Medicine, Baltimore, MD, USA.<br /><searchLink fieldCode="AU" term="%22Robinson+M%22">Robinson M</searchLink>; Independent ALS Patient Advocate, Denver, CO, USA.<br /><searchLink fieldCode="AU" term="%22Cedarbaum+JM%22">Cedarbaum JM</searchLink>; Coeruleus Clinical Sciences, Woodbridge, CT, USA.; Yale School of Medicine, New Haven, CT, USA.<br /><searchLink fieldCode="AU" term="%22Shank+LM%22">Shank LM</searchLink>; Independent researcher, Glen Burnie, MD, USA.<br /><searchLink fieldCode="AU" term="%22McDermott+CJ%22">McDermott CJ</searchLink>; Department of Neuroscience, The University of Sheffield, Sheffield, South Yorkshire, UK.<br /><searchLink fieldCode="AU" term="%22van+Eijk+RPA%22">van Eijk RPA</searchLink>; Department of Neurology, UMC, Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, the Netherlands.; Biostatistics & Research Support, Julius Centre for Health Sciences and Primary Care, University Medical Centre Utrecht, Utrecht, the Netherlands.
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22101587185%22">Amyotrophic lateral sclerosis & frontotemporal degeneration</searchLink> [Amyotroph Lateral Scler Frontotemporal Degener] 2023 May; Vol. 24 (3-4), pp. 272-280. <i>Date of Electronic Publication: </i>2022 Nov 04.
– Name: TypePub
  Label: Publication Type
  Group: TypPub
  Data: Journal Article
– Name: TitleSource
  Label: Journal Info
  Group: Src
  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Taylor+%26+Francis%22">Taylor & Francis </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101587185 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2167-9223 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2221678421%22">21678421 </searchLink><i>NLM ISO Abbreviation: </i>Amyotroph Lateral Scler Frontotemporal Degener <i>Subsets: </i>MEDLINE
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=36330850
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/21678421.2022.2140592
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        StartPage: 272
    Titles:
      – TitleFull: A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Boyce D
      – PersonEntity:
          Name:
            NameFull: Robinson M
      – PersonEntity:
          Name:
            NameFull: Cedarbaum JM
      – PersonEntity:
          Name:
            NameFull: Shank LM
      – PersonEntity:
          Name:
            NameFull: McDermott CJ
      – PersonEntity:
          Name:
            NameFull: van Eijk RPA
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 05
              Text: 2023 May
              Type: published
              Y: 2023
          Identifiers:
            – Type: issn-electronic
              Value: 2167-9223
          Numbering:
            – Type: volume
              Value: 24
            – Type: issue
              Value: 3-4
          Titles:
            – TitleFull: Amyotrophic lateral sclerosis & frontotemporal degeneration
              Type: main
ResultId 1